Loretta & Kathy,
Thank you both for your love and comments. I appreciate you both so much. I need this site! I need the encouragement. I feel so alone. My husband is so good and understand however, he truly doesn't understand the depth of pain and struggle that I go through just to get up and get dressed everyday.
I am so happy to know that I have others that I can talk and relate to.
Please continue to write.
Hugs!
Lauri

Hi Lauri, It is difficult for others, even family that live with us to comprehend the depth of this disorder-the pain and discouragement it brings. My husband didn't have a clue for a long time what I was going thru, but now he does and that is a real blessing. It was hard on me, the time he didn't understand. But grateful now.
You'll find some friend will have some comprehension and others won't. I have a friend who's husband has bad RA, so she can relate.
I went thru over 2 years of grief therapy when my parents died -I was 25. and the loss was so difficult. I'm grateful for the therapy, as it helped me also with RSD. RSD comes with it-a lot of losses. sports, if we were active in that, Just normal things,like cooking, entertaining, cleaning our home, During flares, we are even homebound. Just grocery shopping is too much. So for me, when I went full body, going to a psychiatrist was a real blessing to me. I've been with him 6 years now and just now going from once a month to once every 2 months. He is my pain management doc.
You might share with your husband certain posts on neurotalk. or some information on different rsd websites. The one I like a lot is rsdrx.com And the puzzles list or the 150 questions and answers.
Thank you for your letter, your friend, loretta with soft hugs

Thanks Loretta!
I did look at those other websites you mentioned and I have seen them before. I do like them a lot!
My husband is the best! I know he tries to understand however it's just something that if you haven't experienced personally, you truly cannot understand it's depth. I wouldn't wish this on anyone!
You are right, just doing simple things around the house, shopping, going to the mailbox... they are all difficult for me. I am making myself try and walk around the block everyday just to keep alive... my muscles are wasting away from inactivity and that just makes everything worse...
Wishing you the best!
Lauri

Hi. I am sorry for all you are going through and the future surgery. I would talk to your pain doctor about this before you have it. They may be able to suggest some treatment to help prevent it from spreading and to keep you more comfortable. I know even my non rsd areas are extra sensistive since dx. I think your outlook and being positive is so great. I feel in the long run it helps in recovery. I am also glad you have wonderful family support.

Thank you Daniella!

welcome to NT Lauri !