Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-15-2010, 09:17 AM #1
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Default working with RSD,and what type if any

just curious to know if anyone is working with the rsd,an to get an idea of what kind ,an how you handle the pain with either standing,sitting for long periods at a time.an also how do you keep your focus for long periods on what your doing.with all of that.i have to keep moving,cannot sit still,if laying down constantly squirming all the time.would love to try an do something just don't know what.i also know my options are limited with all the meds in which i'm on.
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Old 10-15-2010, 09:21 AM #2
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Originally Posted by bigsav32@yahoo.com View Post
just curious to know if anyone is working with the rsd,an to get an idea of what kind ,an how you handle the pain with either standing,sitting for long periods at a time.an also how do you keep your focus for long periods on what your doing.with all of that.i have to keep moving,cannot sit still,if laying down constantly squirming all the time.would love to try an do something just don't know what.i also know my options are limited with all the meds in which i'm on.
I am way new to all this and I am having the same problem. For me though I have to take care of my disabled son who has had a brain injury so through the pain I have to push myself. Its very difficult daily to deal with the pain issues. Marsha
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Old 10-15-2010, 11:07 AM #3
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I am way new to all this and I am having the same problem. For me though I have to take care of my disabled son who has had a brain injury so through the pain I have to push myself. Its very difficult daily to deal with the pain issues. Marsha
I work online from home doing sale. The possibility of being able to comit to getting to a job on time became a thing of the past a long time ago.

Dawn
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Old 10-15-2010, 11:19 AM #4
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Welcome and WOW-Sorry to hear that you have RSd. To get comfortable from being squirmy, I soak in a warm epsom salts bath and I use Arnica Salve afterwards. I have RSD since 2007-Hang in there Fondly-Carol
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Old 10-18-2010, 02:27 AM #5
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Originally Posted by marshamarshamarsha View Post
I am way new to all this and I am having the same problem. For me though I have to take care of my disabled son who has had a brain injury so through the pain I have to push myself. Its very difficult daily to deal with the pain issues. Marsha
LOVE your screen name!! Now you can crack me up here too..Love ya!
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Old 10-15-2010, 02:17 PM #6
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Am wondering the same thing. It would HAVE to be some type of work from home for me where flexible time frames are acceptable. We don't have the money right now for me to go back to school for retraining. When we do I'm not sure I'm capable of committing to a set schedule.
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Old 10-15-2010, 06:54 PM #7
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Am wondering the same thing. It would HAVE to be some type of work from home for me where flexible time frames are acceptable. We don't have the money right now for me to go back to school for retraining. When we do I'm not sure I'm capable of committing to a set schedule.
i'm with you.
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Old 10-15-2010, 07:55 PM #8
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Check with your State's Workforce Investment Office to see if they have special training programs for you - under certain conditions you may qualify for re-training. It's worth a shot.

I was out of work on WC for a year with my RSD when it became too acute for me to manage - it was pretty awful since I have always worked full time. Low dose ketamine infusions helped me get better enough so that I could return to my job in June. I am a CPA so most of my work is done at a desk, it's all "light duty." Before I tried ketamine I had done just about everything else - blocks, meds, lidocaine infusions and tons of PT. Ketamine is the only treatment that ever really worked well for me (although lidocaine infusions were very effective for the terrible burn).

I think a lot of my brain fog was caused by the meds, but some was from the RSD also when it was in the acute stage. I am off all the heavy meds now, or I could never do my job. I will take fiorcet for my headaches. But usually nothing stronger when I'm working.

The best of luck to you. Never ever give up trying to get better or finding a treatment that works for you. XOXOX Sandy
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Old 10-18-2010, 07:33 PM #9
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Originally Posted by SandyRI View Post
Check with your State's Workforce Investment Office to see if they have special training programs for you - under certain conditions you may qualify for re-training. It's worth a shot.

I was out of work on WC for a year with my RSD when it became too acute for me to manage - it was pretty awful since I have always worked full time. Low dose ketamine infusions helped me get better enough so that I could return to my job in June. I am a CPA so most of my work is done at a desk, it's all "light duty." Before I tried ketamine I had done just about everything else - blocks, meds, lidocaine infusions and tons of PT. Ketamine is the only treatment that ever really worked well for me (although lidocaine infusions were very effective for the terrible burn).

I think a lot of my brain fog was caused by the meds, but some was from the RSD also when it was in the acute stage. I am off all the heavy meds now, or I could never do my job. I will take fiorcet for my headaches. But usually nothing stronger when I'm working.

The best of luck to you. Never ever give up trying to get better or finding a treatment that works for you. XOXOX Sandy
hey sandy, that was right on. i could very much get with that and i appreciate your response. thanks.
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Old 10-18-2010, 07:38 PM #10
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hey sandy, that was right on. i could very much get with that and i appreciate your response. thanks.
did a 5 yr apprenticeship at penn state university,was making good money before i got hurt. not totally out of it. just have'nt found my niche yet,for i refuse to quit an the day i do, i would have let it beat me. but there are alot of days where i would just like to get with someone who understands what im going through
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