I have R.S.D for three years, I got this when I had a total knee replacement. My doctor said I was the first one in 30 years of practice to have this. It is in remisssion for now but has moved to other parts of my body and my new doctor said that it cannot spead he has no clue.. Can anyone help me find a good R.S.D doctor in Michigan........Thanks

Hey what part of MI do you live? I have seen doctors in MI,OH,CA,FL. I am from MI originally. If you want to PM me I am here.

Hi Debra, Sorry to say, RSD does spread, more often than not. Obviously neither Dr. has experience. I have had RSD for 15 years-now full body and internally. I did go into remission twice for a year each. While in remission, we don't have symptoms. If RSD is spreading, then we are not in remission.
RSDSA is the national organization for RSD. You can put in your zip code and fine local support group or find a Dr. that treats RSD. Many of us have gone to different states for treatment and see a good Dr. and don't regret it at all. In fact, that is how I got diagnosed-traveling to another state. Was 4 years before I got diagnosed.
Obviously, Drs. don't like to be connected to the original cause of RSD, thru either treatment ie surgery or lack of treatment following getting RSD from the surgery.
Hope you can find a good Dr. There are many out there, but most of us have been thru some inexperienced one first.
My excellent Dr. of the last 6 years isn't taking new patients, but just opened two clinics that have HBOT, which is used for RSD-increase circulation.
Take care, loretta

In the flint area.. Thanks..

Thanks I will.. Have a great day....

I will PM you.

i can move to other part started in just my right ankle now have both ankles legs and hip all of my back worst in lower backand right hand it can be very hard to find a good dr hope you find one

Debra,
I am so sorry to hear about your pain, but they are right unfortunately. If it is spreading and you are experiencing symtoms, anywhere, you are not in remission.

But, the earlier you treat the disease, the easier it is to get you in to remission. Time is of the essance. Do your research, find a Dr. This is a GREAT forum for you. Be specific on your Titles. Set it up with something like,
Need RSD DR in Michigan area. You would be surprised at how many people are on here and can help! This is your first step.

Good luck,

May God Bless you with Peace and Rest

Renee'