Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-24-2010, 01:50 PM #1
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Default One thing after another

Ever feel like it's one thing after another?...

That's how I feel right now.

As if coping with RSD isn't enough, I developed Syncope and collapse about 25 times on average a day. My Doctor has never seen Syncope in RSD before so is pretty clueless about how to treat it and no other Doctors specialising in that area will see me until I am 16 ... another 3 months and half months away and a long waiting list after that !

I had an MRI scan on my back a few weeks ago as I have been having a lot of back pains and keep developing a lump in the mid back region that goes red all the time. My Doctor assumed it was the RSD that had spread but wanted to be on the safe side so order the scan.

During the scan, the radiographer told me that she thought she had seen what was causing all of my problems but wouldn't tell me what was wrong. Mum told my Doctor to chase things up and he called her Friday and said that they had found 'abnormal findings' on the MRI scan but because he is my Pain Management Doctor and not my Orthopaedic Doctor, he can't tell me what is wrong. The only thing we were told was that it could be something that I have had from birth or could have recently developed.

I don't have an appointment with my Orthopaedic Doctor until the 18th November so we are playing a big waiting game at the moment!

I just wish things could be easy for one. I'm not one to complain usually, but it is all getting on top of me at the moment ... i'm sure you all understand how that is !

I do hope you are all doing well!

Alison x
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