Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-17-2007, 01:01 AM #1
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Join Date: Nov 2006
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Default What things do you do now

that you did before your RSDS? When Inhishands asked about hobbies it brought up what I was wanting to ask about.

What things do you do now that you did before RSDS?

Do you go to Church?

Do you take walks with your mate?

Do you go hiking with your mate or just by yourself?

Do you take rides to enjoy the scenery?

Do you go on picnics?

Do you go window shopping?

Do you go grocery shopping?

Do you spend the day with your kids or grandkids doing things?

Do you go to peoples houses for any length of time such as parties or get togethers?

Do you take trips to other states?

Do you go hunting or fishing?

Do you go camping?

Do you play games with your kids or grandkids such as throwing the ball or racing or hide n seek?

Do you go on picnics?

Do you hold down a job, full or part time?

Do you go to school?

Do you sat and read a whole book without falling asleep or giving up because you can't keep your mind on it?

Do you write letters that need to be written?

Do you pay bills?

Do you deal with money problems over the phone yourself?

Do you deal with bill collectors with no stress?

Do you deal with problems of any type with no stress?

Do you ride bikes?

Do you ride horses?

Do you clean your own house or have the energy or getup and go to do it?

Do you do your own laundry?

Do you work in your yard?

Do you spend time with your mate and are you able to enjoy it and concentrate on it?

Can you be intimate with your mate? This is personal but it is just one of the normal things in life that I found hard to do due to my health?

Do you drive yourself to the Dr?

Do you drive yourself anywhere you go?

Do you go to nightclubs or dances?

Do you have nights out with your mates?



I really don't expect any of you to answer all of these questions. These are just some of the things I am really interested in having some input on.

As I told you before in March I am having a VNS put in due to depression and I am so hoping that it will open the door for me to do some of the things I did before I got RSD and TOS.

I was just talking to my PCP and he uses the word unique when he describes me. I always say I'm abnormal, he hates for me to say that, but I feel that way. My Neurologist describes me as a walking miracle, I just think I'm a lost cause.

I just wanted to know how many of you are living somewhat of a normal life in the ways I mentioned above or ever thought about it. I might depress you by getting you to think about it but at least it will get you guys to strain your brains. Just kidding.

It just really bothers me that I am the way I am. Bill took care of me for the last 19 years but after the RSD and TOS I was so much worse and my depression was so much worse.

I just wanted to know if any of you feel the same way I do about things you can't do that you use to do.

Thanks to all of you for the love and support I get here. All of you help keep me going. If I'm down I can come here and read and talk to you. We need that support.

Ada
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