Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-07-2010, 12:30 PM #11
lorigood243 lorigood243 is offline
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Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
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lorigood243 lorigood243 is offline
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Join Date: Jul 2010
Location: Northern Virginia
Posts: 224
10 yr Member
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Thank you Cindi

Some days as you know are better than others. Since I have been on the Fentanyl Patch and a very small dose of Methadone...like 10mgrs a day..I am SO sleepy all the time. I cant stay awake unless i take the caffeine i will try to find something else. The B12 never helped me. I wish for just one day that i didnt have to think about this illness. Just one day for my mind to rest and have peace. When i go to to church and hear the music and sing, it fills me up and i dont think about RSD...other wise i have to calculate my physical movements, what i am going to eat and when. Just too much planning and thinking. I have to make sure i dont take pain meds before i go out to drive and that i have taken enough caffeine that i will stay awake to drive.

I am sure everyone else goes through this at one level or another. Im just tired of it.
I have to count my blessings of all the things i can still do and try not to think about the struggle of it all.
Lori
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Wishing you a day of pain free movement that turns into forever!
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