Howdy all. It's Mark! Well here I am attempting miserably to dig myself out of my hell. It has been a while (before Christmas) since I spoke to most of you. I am slowly coming back around and I need to get with the program. I am no longer ATallOne - so I am now using this new name. I thinks it fits. I have missed you all tremendously and have thought of you often. But when my bedroom became my sanctuary for so long I really hadn't seen the light of day for a while. Now with everything else I have had to deal with in my life I just find out two weeks ago I am now in the early stages of Parkinson's Disease. Of course, why now? I'm like velcro these days. Throw it at me and if it sticks well than I have it. So I just add it to the list of - hmmmm lets see now - RSD/CRPS, Restless Leg Syndrome, Peripheral Neuropathy, MS, and now Parkinson's. Oh and I am in the middle of a wonderful case of shingles. On my back in the same spot as last year. So I guess this is going to be a annual thing. Yeaaaa!!!!!

For those of you who know I am moving I have not yet. It has been too cold and I have been bed bound. But will be doing so when it warms up soon I hope. I just got shot down on my second round for disability (that's with a attorney). So now they have to drag my dead ***** in front of a judge so he can check my pulse. God I hope I don't get the same one that's keeping Anna Nicole Smith's body on ice or I'll look like hell. Seems a new Legislative Ruling went into effect last August changing the program considerably and just about the only folks getting it now right off the bat are widows/widowers and specal cases. I feel I'm pretty special. I was always told I was special growing up!

Well That's about it for now. I will chat more when I can. Won't be as often as it used to but I will do my very best. Miss you all. I sure do wish I could meet you all someday. It would be the bomb. Chin Up!!!!

Mark

I'm sorry to hear that you are having such a hard time of it. My Mom and Dad both had Parkinsons'. Mom had it earlier in life then Dad got it.

I have told several on here before the way I got my disability is getting a State Rep involved. I sent him a letter explaining my situation of and a copy of my files which I know he didn't read them all but he sent me a letter saying it would be sent to SS and I would here something soon It took me one week from his letter to get my ok on it. You might want to try this.

As far as widows benefits, it hasn't been easy for me. It's took 3 months to get my mess straightened up and I won't know until Feb if it is straightened up or not. They said that the computer had messed it up. Well someone has to run those computers.

I hope you can stick around and get out of the room. I know that feeling also. I have been living in one room of my house. Since Bill passed away I have gotten even worse. It must be what we go through with the illnesses we have. I have tried to figure out which one is causing what and I can't do it. When you have so many and the symptoms overlap then it's nearly impossible.

Hope you start seeing some better days.

Ada

mark.... so sorry to hear things are not going well...all our lists seem to be getting longer..AND IT SUCKS!!!... great idea about going to maybe your local congressman or state rep. my congressman helped alot when i needed some..give it a try when you can....the lawyers also lost my case (not for disability though)
Yes!!! you are very special and don't forget it..
try the best not to get a blind judge...this crazy world doesn't make any sense anymore....seems like the muck always gets in the way.... wishing you the very best....linda

Ada, you and Linda have sound advice there. Unfortunately I live in the worst Democratic, corrupt, political back stabbing, finger pointing, Near Do Well Yankee Good Ole Boy State on the East Coast. I could try but I seriously doubt they would much give someone like me the time of day. I mean after all I'm not a illegal alien. But than again you never know. Stranger things have happened. I look like a alien though don't I?

Well thanks again for your thoughts. And it is so good to be able to chat again for a bit. I hope it last for a while. Take care of yourselves. Chin Up!

Mark

According to your picture you sure are a cute alien. LOL

Ada

mark,

it's so good to see u back with us....i just wish u had better news than parkinson's.....as for your disabilty ruling?.....don't let the b******s get u down!......and i hope u r feeling a bit better soon so that u can make the move in time to enjoy summer.

liz

It is good to see you!

I feel ya on all that your goin through bro. I too live in one room, and a lot of times in the bed. Since I dont have pain meds anymore it is crazy pain.

The SSA is another fun merry go round, make sure you keep an attorney. Also make sure you know what the attorney is going to cover in court, at least when you get that far. I didnt ask mine, and was sadly disappointed.

Fired her, and found one that seems to be working out great, but then again since hiring him he has only written one letter. Been waiting over a year now on the desicion from the appeals council. In may it will be a year and a half exactly. I believe I should be hearing from them very soon. One way, or the other. Will let ya know how it goes.

Been tryin to pump myself up to go out and do something, and then attend my nephew's wedding today for a couple of hours. Feel like I got hit by a mack truck.

Good to see ya posting though, ya know it really helps to have some kind of relationships, and this place is really like family. Everyone helps a ton!!

Hey Mark!!

Great to see you back here, I'm thrilled But very sad to hear how you've been doing PD as well...I don't know what to say, it's just all too much. Just too much.

Love the new name, you wicked one you; and *really* like your sig - says it all.
Welcome home...
all the best xxx

it is wonderful to see your 'alien' face again.........i am so sorry about the new diagnosis....seems like when it rains it pours..........

to think that ssd is soooooooooo hard for the DESERVING to receive..........can't believe the friggin hoops they make ya go through.....

i hope you start posting your funny threads again.........hope that we see more of you soon..........does the work road trip sound familiar?// good idea to get out of this friggin cold weather...............

chin up and smile...it makes em wonder what you are up to

Hello Mark: It is good to hear from you again!! We missed your funny posts. I just assumed that you were not yet set up because of the move. I am sorry to hear of your additional diagnosis of Parkinson's. It seems to me that most of us with RSD have something else going on as well, and if we don't, something else will afflict us later for sure.

I see that even though you are dealling with shingles and had to postpone your move, you still have the fire within. Keep on keeping on!! Regards, Lil