Hi,
I haven't been here for a while. I do have questions to anyone out there. I have a stump neuroma (grew back) and a new neuroma next to it. I developed RSD shortly after the surgery. I have been to many different doctors and now I am staying with my own podiatrist and primary care doc. I have seen 3 pain doctors, too. They all say that I cannot have surgery for the neuromas due to the possible negative results of the RSD.
Does anyone here have the same problem and how do you get around? It is becoming really hard to walk more than 50 yards without having a flare develop.
Also, does anyone have a neuro-stimulator in the spine? I am very scared of
that. So, that's about it.........thanks and please give me any hints for control of these nasty neuromas/RSD.

Oh, one more thing. I am losing my memory....saying incorrect words, etc. Does that happen, too? Thanks again.

So sorry for what you are dealing with!

Just wanted to point you to the sub forum we have that discusses the Neurostimulators (SCS's and Pain Pumps).....
Here's the link to get you to that part of the forum if you wanted to read up on it:
http://neurotalk.psychcentral.com/fo...ysprune=&f=118

Several here have good input to share
Some have had RSD spreading with these units.....so do take a good long gander at the pros and cons.....

I hope things look up for you
Caring
Rae

Hi,

So sorry to here of your situation. I have been told that I have a neuroma in my elbow. I did have one surgery for it ,they did not find it and truly I think it made it worst. My fault, my surgeon did not want to do it I truly had to beg. The problem was he could not see it on a MRI or CT. But it was my last leg of a very long injury and just wanted to try to get as normal as possible. You don't often here talk about neuroma's on the fourm. But they are a real pain in the .....,the pain the discomfort from it is constant and extremely annoying. I quess I'm lucky it's in my elbow because I know most develop in the leg and feet, which has got to be hell. My biggest problem is finding a doctor who really knows that area of medicine. My surgeon and pain doctor are one of the best for this but unless they see it on a film they will not cut me again and there really is not any other treatment except to try and control the pain and discomfort. This is really by worst area of problem and maybe one day I will be able to find it. I was referred to a doctor down near John Hopkins, he used to be on staff there but is no longer. His name is A.Lee Dellon, MD. I spoke to his office 2x's and he emailed me also. Honestly if you contact him or go on his web site he claims amazing things. I didn't get the best feeling and never went to see him. He just claimed so much in an email I just felt insecure. I have heard some very good and some very bad. So just be careful if you should search him out.

If you have any information on doctors who work with neuromas I would be interested. In some of the research I have done it is very hard to find someone who does this type of work. I have discovered doctors who do vascular and nerve type of work/surgery or plastic surgeons are the best trained to deal with this type of problem. But it is very dangerous and can really mess a person up if not done properly. I have lived with this for 5 years and I think it is what keeps my RSD alive for lack of a better word. If I could get rid of the nagging pain which is constant I would feel better, be able to do so much more. But I haven't found the solution, yet.

Good Luck

Gabbycakes

Thanks so much for writing back, Gabbycakes. First of all, I love your name!! Secondly, thanks for the advice and thoughts. I guess these neuromas can grow anywhere. I never heard of one in the elbow. My podiatrist had a lot of knowledge about neuromas and didn't seem surprised that I had one. He took the first one out but a stump grew back plus another one, possibly two. I just seem to grow these things. About surgery, doc told me that more surgery would make the RSD worse.......move up my leg or elsewhere. So, I am scared. I guess I want some kind of miracle.
Good luck to you, too. I will look up that doctor that you mentioned but if you felt a little "off" about him, that is kind of telling. That first gut feeling usually is right. Thanks again for the info and let's keep in touch.

Hi Rae,
Thanks for the info. I will definitely check out the site above that you sent me. I have heard good and bad stories, also, about the neuro-stimulator. I am scared to try it. There really is no alternative left because the lumbar nerve block may or may not work, too,since I haven't reacted to small nerve blocks before on my ankle and foot. I just have to adjust to this new life, I guess. Thanks for the info and let's keep in touch.

Hi,
Yes, it is rare to have one in the elbow so it's just has hard to try and find a doctor to get a second opinion. I have a wonderful surgeon who truly saved my arm. He has stated the same thng to me about continous surgeries. It will make the condition worse. I would get the second opinion just for the opinion.

Good Luck.

Gabbycakes