Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-11-2010, 01:58 PM #1
kathy d kathy d is offline
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Hi Gabbycakes,
It seems like your increase in PT and general movement has increased and possibly spread your RSD (I pray not) and look forward to seeing what your doctor suggests. It seems he is a good and smart doctor. My rsd went full body within 4 months so I have no idea what it would be like for it to change after time. Good luck with your doctor appt. and let us know how you make out.
take care,
kathy d
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gabbycakes (11-11-2010)
Old 11-11-2010, 06:30 PM #2
gabbycakes gabbycakes is offline
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Originally Posted by kathy d View Post
Hi Gabbycakes,
It seems like your increase in PT and general movement has increased and possibly spread your RSD (I pray not) and look forward to seeing what your doctor suggests. It seems he is a good and smart doctor. My rsd went full body within 4 months so I have no idea what it would be like for it to change after time. Good luck with your doctor appt. and let us know how you make out.
take care,
kathy d
Thanks everyone,

I did get a cortizone shot yesterday which helped tremenously. Went over the Cervical MRI I had a month age and there is a slight blug. Will review again in 30 days and if it goes back to feeling flared again, he'll do a cervical epidural, wow can hardly wait. I did have great results from the 2 lumbar epidural I have had a mean almost pain free and I was at a point after sitting for a long time I could barely walk, once I got going I was ok but that couple of minutes was hell.

Thanks for all the concern.

Gabbycakes
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Old 11-12-2010, 10:09 PM #3
kathy d kathy d is offline
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Hi Gabbycakes,
I am so happy you are doing better and the shot worked well. That burning pain can drive you bonkers for sure. It is soooo relentless. I am getting somewhat used to the heavy burning pain in my chest/abdomen now as I was told it is in my skeletal system. Yeah for me huh haha. Glad to hear you are doing better. Keep up the great work.
take care,
kathy d
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gabbycakes (11-13-2010)
Old 11-13-2010, 06:10 AM #4
gabbycakes gabbycakes is offline
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Originally Posted by kathy d View Post
Hi Gabbycakes,
I am so happy you are doing better and the shot worked well. That burning pain can drive you bonkers for sure. It is soooo relentless. I am getting somewhat used to the heavy burning pain in my chest/abdomen now as I was told it is in my skeletal system. Yeah for me huh haha. Glad to hear you are doing better. Keep up the great work.
take care,
kathy d
Hi kath,

I am doing better even more so since it's been a few days. He did say by Friday you should feel the full effects. I'm still favoring the right arm(RSD arm) which is really not what I should be doing. But today I'm going to try and use and left normally. I just hope that pain doesn't come back.

Thanks for all the support.

gabbycakes
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Old 11-13-2010, 10:14 AM #5
daniella daniella is offline
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Glad you are doing better. I can relate to the relying on other body parts to protect the worst of the rsd area. I know I have created problems in others areas due to that. On my better days though I try to slowly be more even so to speak with how I move my body. I hope you continue to get relief
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Reddawn600 (08-08-2011)
Old 11-13-2010, 10:27 AM #6
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Hi Gabby! Have you tried vitamin c infusions? I had an ankle injury 8 months ago and my rsd started to spead to my ankle. It was bad. Then I had a set of vitamin c infusions and the ankle got a lot better. Alternative medicine centers have those kinds of infusions sometimes. There was a study that actually showed that giving large doses of vit c to patients after injuries, seriously lowered the likeability to develop rsd. So don't dismiss them as there are scientific studies backing them.Vit c works by activating circulation. I would give them a try.
Good luck and best wishes! Big hug!
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Old 11-13-2010, 03:42 PM #7
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Originally Posted by janejane View Post
Hi Gabby! Have you tried vitamin c infusions? I had an ankle injury 8 months ago and my rsd started to spead to my ankle. It was bad. Then I had a set of vitamin c infusions and the ankle got a lot better. Alternative medicine centers have those kinds of infusions sometimes. There was a study that actually showed that giving large doses of vit c to patients after injuries, seriously lowered the likeability to develop rsd. So don't dismiss them as there are scientific studies backing them.Vit c works by activating circulation. I would give them a try.
Good luck and best wishes! Big hug!
janejane,

Someone else just said the same thing on this fourm, I think it was kathy d. I have to check all that out. When you say Alternative Medicine Centers what do you mean? I have never heard of that. I live in NJ about a 1 or 2 or 3, demending on traffic, for NYC. If you have any recommendations I would appreciate it. I would love to go all natural if I could. So I would definitly be interested. Does insurance cover it?

Thanks for the info.

gabbycakes
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