Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-14-2007, 01:50 PM #1
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Default flippnout you there?

hello sorry everyone just wanting to see if flippnout got my message, I know he is in missouri also. I think I will try this way flippnout did you get my message? let me know OK.
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Old 02-17-2007, 02:18 PM #2
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Lilly,
hello yes I did get it sorry it took a while. I fell very worried to email or do these things any more some one who said they had TOS and RSD lied to me about having this awful things we have. So I am careful who I talk to you should too, any one can pretend to be some one on this world wide net, because we do not see them I can tell alot from a person by looking at there face and body while talking but on this you cant and people do tend to lie, I have read some interesting articals about this.

Lilly you sound nice be careful, I at this time do not want to communicate that way since again some one on this claims to be hurt yet tells a diffrent story all the time in e-mails to me. I love this site and will not stop being here funny how a person can learn a lesson.

flippnout
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Old 02-17-2007, 02:41 PM #3
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Poll lessons learned

Hi Flippin
Just as I told you in the beginning of our conversations, there is a lot to learn in WC. More than anyone would ever imagine. Hope my words of wisdom to you have helped good friend. There is a lot to learn in the world of WC other than just the injury.

This is when we needs friends and support more than ever, yet this is when you have to be most careful of who you talk to and what you say due to someone that might be right around the corner listening. Speak only the truth and it will prevail.

Radar
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Old 02-17-2007, 03:58 PM #4
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Default Hi all,

It's really sad to hear we have spies on here. I don't know how anyone could tell unless they talk on the phones and get to know someone.

There are a lot of new people coming on and I would hope it would be for the right reason but how would we know?

Ada
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Old 02-17-2007, 04:31 PM #5
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what a shame!!!!! why do others have to always ruin a great thing for themselves and so many others.....spies ...you are not wanted here..go away! linda
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Old 02-17-2007, 07:18 PM #6
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Trig

now understand why so many people use nicknames. It is SO wrong to come and spy ona private forum..

the other day in class someone reffered to the words "munchaussens by internet"... I was intrigued so looked it up --> apparently there are some very very sad and pathetic people out there who pretend to have illnesses, join a support group and then tell you that they have it. I can't believe someone could do that though - it ruins all the trust between people. I understand that this also means WC people etc as well - which is just as bad... it's almost a form of emotional rape - feeling that someone is spying on you whilst you try to gain support.

The aim of this forum, I believe, is that none of us have to be shy about discussing our emotions, fears, symptoms or good things! we shouldn't have to be so careful to protect everyones identities - but it now makes sense!!!

on that note - I'm becoming Frogga!!!

lol

leave spies - we don't want you!

Froggsy xxxxxxxxxxx
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Old 02-17-2007, 07:26 PM #7
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Dear Frogga,

Has anything else happened recently to pique your interest in this matter?

Mike
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Old 02-17-2007, 09:39 PM #8
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Yes, this is something that goes on for sure. Whatever they are, spies, munchies, troublemakers for the fun of it, or the sickness of it, they're all trolls. We had one here recently (still posting on BT1, I notice).

Trust is everything on a forum like this; we have some very experienced forum-goers on this one, one or two can spot a troll a mile away; some don't post very often, but you develop an instinct for it and I always trust their judgement. Inconsistency is the key to spotting them...and a continual assertion of facts which are basically wrong.

I'm afraid I am very severe when it comes to this; I would prefer to chuck off someone who's innocent than run the risk of leaving them loose in the group - it does considerable damage to all the other members' self-esteem.

BTW, this is also why new members are encouraged to post their story or at least say "hi, I'm new here"; the trolls often just barge into a post with no nod to the fact that no one here knows them from Adam. Also, look at the number of posts they've made, occasionally you get "hit and run" trolls. And look at the profile and previous posts of anyone you are worried about.

Some forums have a code word to alert people and warn them not to encourage the troll by responding to their post (only to be used if you're pretty certain, you understand). Perhaps we should too, it could be PMd to everyone here as of, say end of January, and renewed every 3 months - if we have any here now then they'll know it too, but you've got to start somewhere. Just a thought,

all the best
 
Old 02-18-2007, 09:46 AM #9
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Default it is so sad.......

to hear that there seems to be spies again.......
i am one who rarely posts, as i can't keep up with all the new people.........but i do read, and try to say hi once in awhile..........

flippinout, it is terrible that someone whom you trusted, and probably confided in has shattered that trust.............some people just have too much time on their hands, and need to find other hobbies instead of coming to forums like this and causing trouble........

we usually were able to 'weed ' out the trolls, and hopefully it will be safe one day soon again........

this is for support, not head games.............we need our groups here, and it just really p***** me off that some feel they can just invade our space.............................there are so many things out there in cyber space, hopefully these trolls will find something else.............or just drop off the computer world...but i doubt it..........

i for one have made several friends from this group.......have met with several in person, and speak with them on the phone a lot...........without this group, i don't know what i would have done.................
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Old 02-18-2007, 01:00 PM #10
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I would like to add that if you suspect anyone please PM me or any mod and let us know of the user name - or report the post- it will alert us to keep an eye on them.

The forums that move fast are hard to keep up on all posts - so we can really use your help in keeping this a safe place.

And for general internet safety please be cautious of posting detailed personal information. meaning - real names, city, email addresses etc.

Same for PMs to be sure to feel like you know the person before giving out detailed information to them.
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