[lefty]

Hello All,

I have CRPS in my left hand and arm, and I believe it has spread to my shoulder and neck. Before being dx with CRPS, I had two occasions where I passed out, and lately I've been experiancing feeling faint after walking for only ten to fifteen minutes. I have been extremely fatigued so I go to the rec center around 7am for a warm water out. I'm fatigued before I start and even more after. My vision is blurred, and at first I thought it was from my high blood pressure. My blood pressure has been so out of control that my doctor has changed my medication at least five different times. My thoughts are that the CRPS has effected my blood pressure. My doctors thoughts are that I may need to have my Ultra Sound of my renal arteries to see if they are being choked somewhere.

Has anyone had anything simular happen to them like the fainting, or feeling dizzy, or having their blood pressure out of control?

[AintSoBad]

Originally Posted by lefty

Hello All,

I have CRPS in my left hand and arm, and I believe it has spread to my shoulder and neck. Before being dx with CRPS, I had two occasions where I passed out, and lately I've been experiancing feeling faint after walking for only ten to fifteen minutes. I have been extremely fatigued so I go to the rec center around 7am for a warm water out. I'm fatigued before I start and even more after. My vision is blurred, and at first I thought it was from my high blood pressure. My blood pressure has been so out of control that my doctor has changed my medication at least five different times. My thoughts are that the CRPS has effected my blood pressure. My doctors thoughts are that I may need to have my Ultra Sound of my renal arteries to see if they are being choked somewhere.

Has anyone had anything simular happen to them like the fainting, or feeling dizzy, or having their blood pressure out of control?

Thanks for writing!
I've had this SOB for 28 years. And, I'm pretty danng sure, that the pain, (Or, some effect of it) raises BP.

My Doctor, (A REAL PRO @ RSD) is certain. The rest of your symptomolgy seems accurate as well.
How long have you had RSD?


I don't want to make this a generalized statement. My Doctor is at the leading edge of RSD.

So, he has no reason to 'Run All the Tests', to look for this and that, because he see's so many patients/day that all have the same symptoms.
So why run up the bills (Unless you're in a legal contest), when he KNOWS what's up?

I wish that more folks had doctors like mine. He was partners with DR S in Philly.
Dr S went out to be one thing, My doc, (KNOBLER, ROBERT) went out on his own, because Jefferson University Hospital, opted to build a headache wing, rather than an RSD/MS wing.

So, thar ya have it.

RSD can screw with EVERY thing in your body!
Never discount RSD!

(Although, you never hafto blame things on it).


Hope you're all well~


Pete
asb

[SandyRI]

Hi Lefty,

I take .1 of Clonodine, which is a beta blocker, 2x a day to control my blood pressure and pulse. They were out of control for quite a while. Clonodine also comes in patch form, but it gave me a rash and kept falling off. So I prefer the pills.

Good luck to you. Sandy

[ali12]

Hi Lefty,

I was told recently that my blood pressure often goes from being extremely high to extremely low.

I started faiting a few months ago and it got so bad that I was (and still am) collapsing about 20-25 times day. I saw a Neurologist and he diagnosed me with POTS (Postural orthostatic tachycardia syndrome). Its a syndrome that causes you to pass out by lowering the blood supply to your brain. We were told that a lot of people with chronic pain conditions or that are hypermobile may suffer from it.

Unfortunately, I haven't as of yet found something that helps. My Neuro isn't willing to put me on any medications for blood pressure as it isn't low / high all the time and most hospitals over here wont see me until I am 16 (February).

If you ever want to talk, I am here. I know how stressful it is.

Take care,
Alison x

[lefty]

Originally Posted by AintSoBad

Thanks for writing!
I've had this SOB for 28 years. And, I'm pretty danng sure, that the pain, (Or, some effect of it) raises BP.

My Doctor, (A REAL PRO @ RSD) is certain. The rest of your symptomolgy seems accurate as well.
How long have you had RSD?


I don't want to make this a generalized statement. My Doctor is at the leading edge of RSD.

So, he has no reason to 'Run All the Tests', to look for this and that, because he see's so many patients/day that all have the same symptoms.
So why run up the bills (Unless you're in a legal contest), when he KNOWS what's up?


I wish that more folks had doctors like mine. He was partners with DR S in Philly.
Dr S went out to be one thing, My doc, (KNOBLER, ROBERT) went out on his own, because Jefferson University Hospital, opted to build a headache wing, rather than an RSD/MS wing.

So, thar ya have it.

RSD can screw with EVERY thing in your body!
Never discount RSD!

(Although, you never hafto blame things on it).

Pete
asb

Hi Pete, hope your day is going well, and God has blessed you with this doc!
Anyway, God did bless me when it comes to my private doc who first dx me with this disease. I had an work injury in 2008 with two surgeries since then. My workers comp doctors probably knew that I was dealing with this but didn't address it...it was dx by my primare doc, then my surgeon and finally the w/c pain doctor after he got their report. Now it is out there and I and looking for anwsers to why my blood pressure is out of control, why my heart is acting strange? Everything I've learned about CRPS came from the internet and communities like this one, not the work comp doctors.

Good questions as to how long I've had it. I was dx in May, but I believe it's been there a lot longer. Thanks for replying Pete, keep in touch, I'd like that and I look forward to talking to you and others from the community again.

Question! I had an injury in 1998 of my right lower back where my siatic nerve was impegined (sorry about the spelling) where after that things where find and now since the CRPS I can't walk no more than three feet before it begans to burn, pain and ache and radiate down my thigh
could this disease effect and old injury? Lefty

[lefty]

Originally Posted by ali12

Hi Lefty,

I was told recently that my blood pressure often goes from being extremely high to extremely low.

I started faiting a few months ago and it got so bad that I was (and still am) collapsing about 20-25 times day. I saw a Neurologist and he diagnosed me with POTS (Postural orthostatic tachycardia syndrome). Its a syndrome that causes you to pass out by lowering the blood supply to your brain. We were told that a lot of people with chronic pain conditions or that are hypermobile may suffer from it.

Unfortunately, I haven't as of yet found something that helps. My Neuro isn't willing to put me on any medications for blood pressure as it isn't low / high all the time and most hospitals over here wont see me until I am 16 (February).

If you ever want to talk, I am here. I know how stressful it is.

Take care,
Alison x

Hi Allsion, that is very interesting and I will address POTS to my doctor. Thanks for responding, and I will keep in touch...God bless and keep you!