Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-19-2011, 07:40 AM #28
gabbycakes gabbycakes is offline
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gabbycakes gabbycakes is offline
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Join Date: Oct 2008
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Quote:
Originally Posted by CZZ74 View Post
Well I wanted to share my opinion. I could not survive without them
My pain is just too severve. However. I do believe that the breakthrogh meds do cause a flare up every 4- 6 hours. I do believe they can cause wind up.
Actually increase pain for a period each day. several tiems a day actually.
Having said that my pain with out them is so severe i have no choice but to endure it.
Dr. Schwartzman does not support the use of high doses as it interfers with the bodys ability to recieve the benifts of ketamine therapy. I believe i am quoting him correctly. I do know that is true.
Having had exensive ketamne therapy I know it lowers my pain threshhold considerably and therefor the need for such high doses of morphine and oxycontin for breakthough. actually right now I just switched i am on opana er and opana immediate release. so far the opana ir is just giving me horrible migranes and very litlte pain relief but i am only on the second day.I really want to get back to philly for more ketamine infusions but money is now a problem. I had infusions for 5 years. and the coma. I wish i had never stopped.
If anyone else is taking the immediate release opana would you please let me know if it is helping, Mine is 10mg dx every 4-6 hours up to 5 per day. I have not taken over 3 due to migraine. thank you so much cz
Hi, CZZZ4

Just a warning in regards to the Opana and the whole line of morphine based medications. I could not take it because it gave me such a dry mouth which caused problems with my teeth very, very quickly I had to go off. I tried both the opana and the avinza. My RSD is upper extremety so I used to be prone to getting migraines and at that time I was getting them more then I am now. Now I only get one very infrequently. If you start to get a dry mouth and you'll notice it it's very drastic, call your dentist. My dentist gave me another pill to bring the saliva to the mouth but I just didn't want to do it all. The name of the medication I don't remember but it started with an "R".

Good Luck,

Gabbycakes
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CZZ74 (02-19-2011)
 


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