Tons of threads on here about Neurontin and it's cousin Lyrica.

Flushing, fatigue, weight gain, and diabetes are my worst side effects from it.

Hi,

I took both neurontin and lyrica. I had problems with being sleepy I mean I remember driving and almost falling asleep which is not me and the weight gain forget it I gained so much and even after I went off it the weight still kept going. It seemed to take a long time to get out of my system. Now I'm down 60lbs but I'll never take it again. Yet, I have heard people getting great results it's just not for me.

Good Luck

Gabbycakes

For me, the side effects stink, big time......but it's better than the pain.

i have taken it 4 months and it does help my burning....i am horribly sleepy but didnt realize it was from this...but its good not to burn. havent had any weight gain..but its no cure thats for sure.
lori

I tried this med a long time ago and had severe side effects. I would get very dizzy and I finally quit taking it when I passed out outside in the middle of the winter while taking out the trash. I woke up in a snow bank after I don't know how long and it was a long time before I could get myself up and back into the house. Of course I then had a flare from getting so cold from laying in the snow. I do know that many doctors like this drug for RSD, it seems to be a standard of care prescription. Good luck to you and remember that I am just one person, many others take this with no side effects. Lisa

I had horrible side effects with Neurontin. I was sleeping about 16-20 hours a day. When I was awake I couldn't talk, put sentences together or thoughts in order. It was horrible and I was only on 300mg, can't even imagine what a higher dose would have done to me. I stopped it and have refused to try Lyrica because of the horrible side effects I experienced previously with Neurontin. SOme people get very good results from this medication, I don't know how much it helped me, but the side effects were too much for me to handle. Good luck I hope youhave better results than I did.

I have been using Neurontin for a few months now an have increased the dose up to 1600 mg. Dr. Shwartzman doesn't want me going any higher then that but honestly ,I'm not sure it's really doing much for me anyway except for making me somewhat nauseaus, dizzy and tired.

I did take cymbalta and lyrica in the past and had minor side effects with each (this was before I knew it was RSD). At this point I'm considering requesting going back on one of them. Cymbalta seemed the most helpful. It is awful that they all do cause weight gain tho but it's better then pain.

Feel better


Dawn

Hi, I was on both neurotin and then changed to lyrica. 3200 mg of neurotin for a long time, and 400 mg of lyrica. They both helped the burn, lyrica more than neurotin. I gained a LOT of weight and asked to be taken off. I'm gradually losing the weight. There are other drugs that help with burn and pain. Cymbalta is one-anti-depressant-I'm on 120 mg. Vicodin-4 pills a day-used to be on 6. Lorazepam really helps, becaue it is an anti-anxiety when calms our system down and helps a lot. I take seroquel and sleep 10 hours a night straight. I take 2 high blood pressure meds. I've had RSD 15 years-full body and internal organ involvement. It's tough, but exercise helps, massage therapy helps, meditation, prayer, music, visualization, puzzles, distractions do help. I just got a camera for a hobby. Playing cards
Hope this helps you. I'm also getting a compounding cream of ketamine, lidocaine, and anti-inflammatories for skin application to help the burning pain.
Welcome to NT, you'll find many caring, informed friends here.Please stay with us. rsdrx.com puzzles list helped me get more informed. Dr. Hooshmand practied RSD for 40 years in Florida-now retired, but still can research on his website. Also RSDSA is the national organization, can put in your zip code to search for support group meetings and also get RSD drs. names. Take care, your friend, loretta

I have neuropathy and have been taking 600mg a day for the last year, no side effects at all and its made it so I dont have to take nearly as much pain medication for the burning in my feet.

Now, my husband just started it about 2 months ago. If you ask him if it helps, he will tell you he doesnt notice a difference at all. But he has no side effects from it either. He also takes morphine, percocet and a dozen other medications, like cymbalta, celexa, (that makes 3 anti depressant types of meds with the neurontin)... he has a very severe case of rsd, so hes taking everything that work comp will cover. Im thinking that neurontin doesnt by itself do much at all but combined with other meds maybe works best. *shrug*

I have been on it for about 9 months now, I have gained weight also , But not
been very active as I got let go in July from my job.
When I first started taking it I felt loopy . That has gottten better.