Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-04-2010, 08:43 PM #6
renhenne renhenne is offline
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Join Date: Aug 2010
Location: Florida
Posts: 43
10 yr Member
renhenne renhenne is offline
Junior Member
 
Join Date: Aug 2010
Location: Florida
Posts: 43
10 yr Member
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Dear Lefty and Married,
As I read your stories I can't help but feel heartbroken for you both.
I asked my "old" PM Dr. to describe the stimulator surgery to me. He was insulted. He said that I didn't need to "put the cart before the horse". First they do the trial, then the surgery. He didn't need to give me any info on the surgery until I knew if the implant would even work. I explained that I wanted to know ALL about both proceedures before I would proceed incase it worked and he looked at me and actually asked "are you involved in a legal case?" uhmmm, why, I asked, "because, I have found that people in 'legal cases' like to extend there pain longer to get more money" he said. You have got to be kidding me!!! I told him that he has obviously never had RSD and has no understanding of this painful disease and what I am going thru. I want info on a proceedure, thats all. And I left his office. Needless to say, he is no longer my Pain Management Dr..

Bottom line is, I have found that we as patients have to be our own advocates! There are some really good Dr's out there, and.... some not so good ones. We need to educate ourselves and ALWAYS ask questions!!!

I wish you and your families health!

May God Bless you with Peace and Rest,

Renee'
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