Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 04-23-2013, 12:02 PM #1
jallen711 jallen711 is offline
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Default Newport Beach RSD

Hello, I live in Newport Beach and was just diagnosed with RSD. I know one other person that also lives in CDM with RSD. Maybe we can chat?? Please feel free to call me. I would love to speak with others with this condition. ** Jennifer.

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Originally Posted by lovefamilypets View Post
Hi Dee,

Thanks for that info! Newport Beach is close to me (I'm in Irvine). I will definitely have to email the group and see if I can become a part of it. Thanks so much! I've been looking for something like this for a couple years! Who knew all I had to do was post on here
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Old 04-24-2013, 12:24 AM #2
daniella daniella is offline
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Hi I live right now in So Cal Thousand Oaks area. I think and have never been there may be a support group in LA somewhere when I had researched in the past. If you want you can email me. I always enjoy having a new buddy. Feel better and I am sorry about your dx
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Old 11-13-2014, 03:18 AM #3
LISAR624 LISAR624 is offline
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Originally Posted by lovefamilypets View Post
I was wondering if anyone knew of a support group for RSD sufferers in SoCal? Or it could be one for chronic pain patients as well. Perhaps we could start one if there is not already one. Let me know if that is something anyone would be interested in.
I find I get lonely and depressed these days being home alone and not able to go out due to the pain. I thought it would be nice to meet people who understand what I'm going through. Hopefully we could support each other and find ways to stay positive in this challenging time. The Neuro Talk board is helpful, but I prefer to be with people in person or at least talk to them over the phone.
-Nicole
Resides in Orange County
I also live in Orange Co. and I have been looking for an RSD/CHRONIC PAIN Support group. I have been suffering with this disease for over 18yrs so it would be nice to talk with someone dealing with the same pain! Thank you Lisa
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Old 11-14-2014, 01:51 AM #4
LISAR624 LISAR624 is offline
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Quote:
Originally Posted by lovefamilypets View Post
I was wondering if anyone knew of a support group for RSD sufferers in SoCal? Or it could be one for chronic pain patients as well. Perhaps we could start one if there is not already one. Let me know if that is something anyone would be interested in.
I find I get lonely and depressed these days being home alone and not able to go out due to the pain. I thought it would be nice to meet people who understand what I'm going through. Hopefully we could support each other and find ways to stay positive in this challenging time. The Neuro Talk board is helpful, but I prefer to be with people in person or at least talk to them over the phone.
-Nicole
Resides in Orange County
I have been looking for a RSD support group in Orange Co. I have been suffering for approx. 18yrs and it would be great to chat with people that know exactly what you are going through. I have been in bed 90% of my day. Lisa
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Old 11-17-2014, 07:04 PM #5
LISAR624 LISAR624 is offline
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Quote:
Originally Posted by lovefamilypets View Post
i was wondering if anyone knew of a support group for rsd sufferers in socal? Or it could be one for chronic pain patients as well. Perhaps we could start one if there is not already one. Let me know if that is something anyone would be interested in.
I find i get lonely and depressed these days being home alone and not able to go out due to the pain. I thought it would be nice to meet people who understand what i'm going through. Hopefully we could support each other and find ways to stay positive in this challenging time. The neuro talk board is helpful, but i prefer to be with people in person or at least talk to them over the phone.
-nicole
resides in orange county
i feel the same way you do nicole. I also live in o.c.
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