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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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RSD Support Group in Southern California

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Old 12-25-2010, 11:34 PM #11
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Hi Nicole,

Im so sorry, I didnt even see this post until tonite, I will private message you her phone number k and if you have any troubles after that, please let me know and I will pay better attention

Merry Christmas
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Old 02-24-2011, 11:15 AM #12
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Default Face to face support group in Highland, Ca 92346
There is a new face-to-face support group starting March 10,2011 in Highland (SanBernardino), Ca.
Dates: 2nd Thursday of each month
Times: 5pm-7pm
Host: Pattie Rosario (18 yrs with Rsd)

Hope to see everyone there!
Gentle hugs :-)
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"Thanks for this!" says:
fmichael (02-24-2011)
Old 04-07-2011, 10:13 PM #13
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Default Face-to-face support group help please
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Originally Posted by Rdmom View Post
There is a new face-to-face support group starting March 10,2011 in Highland (SanBernardino), Ca.
Dates: 2nd Thursday of each month
Times: 5pm-7pm
Host: Pattie Rosario (18 yrs with Rsd)

Hope to see everyone there!
Gentle hugs :-)
Hi Pattie, I live in Riverside and would like to try to come to your group. Please can I have the address so I can find the place.
Thank you in advance for your help. Also, do you know of a good pain Dr.
Melanie/yelocateyes
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Old 04-08-2011, 10:53 PM #14
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ahh too far for me I would love to go, but can't drive more than 30 minutes. I hope the support group goes well. If anyone mentions anything about an Orange County one I would love to know. The Newport Beach one seems to be closed since no one returned my emails or calls.
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Old 04-09-2011, 12:35 AM #15
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ahh too far for me I would love to go, but can't drive more than 30 minutes. I hope the support group goes well. If anyone mentions anything about an Orange County one I would love to know. The Newport Beach one seems to be closed since no one returned my emails or calls.
I'm in the Beach Cities...haven't heard of anything yet...
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Old 04-23-2013, 12:02 PM #16
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Default Newport Beach RSD
Hello, I live in Newport Beach and was just diagnosed with RSD. I know one other person that also lives in CDM with RSD. Maybe we can chat?? Please feel free to call me. I would love to speak with others with this condition. ** Jennifer.

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Hi Dee,

Thanks for that info! Newport Beach is close to me (I'm in Irvine). I will definitely have to email the group and see if I can become a part of it. Thanks so much! I've been looking for something like this for a couple years! Who knew all I had to do was post on here
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Old 04-24-2013, 12:24 AM #17
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Hi I live right now in So Cal Thousand Oaks area. I think and have never been there may be a support group in LA somewhere when I had researched in the past. If you want you can email me. I always enjoy having a new buddy. Feel better and I am sorry about your dx
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Old 11-13-2014, 03:18 AM #18
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I was wondering if anyone knew of a support group for RSD sufferers in SoCal? Or it could be one for chronic pain patients as well. Perhaps we could start one if there is not already one. Let me know if that is something anyone would be interested in.
I find I get lonely and depressed these days being home alone and not able to go out due to the pain. I thought it would be nice to meet people who understand what I'm going through. Hopefully we could support each other and find ways to stay positive in this challenging time. The Neuro Talk board is helpful, but I prefer to be with people in person or at least talk to them over the phone.
-Nicole
Resides in Orange County
I also live in Orange Co. and I have been looking for an RSD/CHRONIC PAIN Support group. I have been suffering with this disease for over 18yrs so it would be nice to talk with someone dealing with the same pain! Thank you Lisa
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Old 11-14-2014, 01:51 AM #19
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Originally Posted by lovefamilypets View Post
I was wondering if anyone knew of a support group for RSD sufferers in SoCal? Or it could be one for chronic pain patients as well. Perhaps we could start one if there is not already one. Let me know if that is something anyone would be interested in.
I find I get lonely and depressed these days being home alone and not able to go out due to the pain. I thought it would be nice to meet people who understand what I'm going through. Hopefully we could support each other and find ways to stay positive in this challenging time. The Neuro Talk board is helpful, but I prefer to be with people in person or at least talk to them over the phone.
-Nicole
Resides in Orange County
I have been looking for a RSD support group in Orange Co. I have been suffering for approx. 18yrs and it would be great to chat with people that know exactly what you are going through. I have been in bed 90% of my day. Lisa
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Old 11-17-2014, 07:04 PM #20
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Originally Posted by lovefamilypets View Post
i was wondering if anyone knew of a support group for rsd sufferers in socal? Or it could be one for chronic pain patients as well. Perhaps we could start one if there is not already one. Let me know if that is something anyone would be interested in.
I find i get lonely and depressed these days being home alone and not able to go out due to the pain. I thought it would be nice to meet people who understand what i'm going through. Hopefully we could support each other and find ways to stay positive in this challenging time. The neuro talk board is helpful, but i prefer to be with people in person or at least talk to them over the phone.
-nicole
resides in orange county
i feel the same way you do nicole. I also live in o.c.
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