Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-07-2010, 01:48 AM #1
hollyk24 hollyk24 is offline
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hollyk24 hollyk24 is offline
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Thanks! I knew about the stuff going on in Washington, because I live so close, and figured that wouldn't be much of an option, but at worst they could give some recommendations to my docs down in Oregon. OHSU has pretty much been a bust for me - they don't really seem up to date at all, I saw 2 drs there and neither had even heard about ketamine as a form of treatment. No doctor I've found in Oregon does any type of infusion therapy - it's all just the standard meds (and just the basic ones at that) nerve blocks, and scs implants. Nothing outside the box, and when I mention something they always shoot me down and tell me it's not worth my time or money to even look into (things like HBOT or infrared light therapy) I actually went ahead with a modified version of the infrared light therapy and was able to drastically reduce the allydonia in my feet to the point where wind no longer hurt!

I was thinking Cali was my best bet, so thanks for the leads - I'll check them out Thank you very much for your help and all the info, it's much appreciated!!!!!
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fmichael (12-07-2010)
Old 12-07-2010, 04:06 AM #2
daniella daniella is offline
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daniella daniella is offline
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I have seen doctors in 3 states CA,MI,OH. I think when you call it is good to ask what pain treatments that doctor offers especially if you are looking out of the box. Some doctors seem to have their "thing" for rsd rather then looking at you as an individual. I will say one of my better pain doctos I found from a suggestion on here. I had already seen top rsd people at Cleveland Clinic and was still in a bad state so I called up a teaching hospital in my areas there pain clinic. I explained my condition and asked if they had a pain doctor who worked with rsd a lot. It was not a student obviously that I would not do but he was the head of the anestesologist dept. Anyhow he really listened to me and looked outside the box. He also did not go along with what other doctors said. I am not seeing him anymore just because I am now out of state and overall invasive treatments seem to do more harm then good at the moment for me. Ok sorry to go on. I hope you can find someone who can give you relief.
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Old 12-07-2010, 09:11 PM #3
tmullen tmullen is offline
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i am currently seeing joshua prager also. i have went from coast to coast looking for doctors, and little did i know he was just in la. since i live in san diego it's not very far. he has done both my implants, SCS and baclofen pump. he has truely given me hope when i thought all hope was lost. he totally understands RSD and the pain and BS we've been through. i hope he is the one you decide to see, you won't regret it.
taylor

joshua P. Prager
phone: 3102647246
www.crpscenter.com
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