Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-23-2007, 08:41 AM #1
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Quote:
Originally Posted by tayla4me View Post
Hi Lisa, I have the same spasm of my hands and feet and it IS horrible

I am now on Baclofan and Clonazepam which help heaps the dystonia heaps. I have whole body clonic spasms and have my baclofan through my intrathecal pump and it has been a godsend.
I also visit a hand therapist who ever so gently coaxes my hands out of the claw effect!
Wishing you luck
Tayla,
My pain doc doesn't want to give me any more "Pills" - and even though I'd rather not, either, I'd much rather take another pill than have these danged cramps! They hurt like heck! I can barely do my job, they keep me up at night, or WAKE me when I finally do get to sleep, and I break down in tears at home constantly cuz of them!

I see the pain doc again on Monday...I just have to get thru to them that this is something that absolutely MUST be taken care of!

Thank you so much for letting me know this isn't just a "me thing." Sometimes I wonder if I'm going nuts.
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LisaM

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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 02-24-2007, 03:41 AM #2
tayla4me tayla4me is offline
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[QUOTE=LisaM;73563]Tayla,
My pain doc doesn't want to give me any more "Pills" - and even though I'd rather not, either, I'd much rather take another pill than have these danged cramps! They hurt like heck! I can barely do my job, they keep me up at night, or WAKE me when I finally do get to sleep, and I break down in tears at home constantly cuz of them!

I see the pain doc again on Monday...I just have to get thru to them that this is something that absolutely MUST be taken care of!

Thank you so much for letting me know this isn't just a "me thing." Sometimes I wonder if I'm going nuts. [/QUOTE


I undersatnd what you mean by thinking you are going nuts and there is some comfort in knowing there are others who share your experiences.
As far as medication taking, I hate it too but I think we need to get it into perspective. If we were diabetic we would take Insulin, if we had heart failure we would take the appropriate medications if the end result is an improvement in our quality of life. Our disease requires some medications which do have some nasty side effects, it is a pay off really isn't it?
Wishing you lots of luck and less pain and cramps
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