Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-17-2010, 06:20 AM #7
SnowWhyte SnowWhyte is offline
Junior Member
 
Join Date: Dec 2010
Location: Wisconsin
Posts: 99
10 yr Member
SnowWhyte SnowWhyte is offline
Junior Member
 
Join Date: Dec 2010
Location: Wisconsin
Posts: 99
10 yr Member
Default

Quote:
Originally Posted by fmichael View Post
Dear Colleen -

Just saw your note to Sandy. You are a beautiful and gifted writer. To the point that the description of your circumstance is terrifyingly immediate.

That said, perhaps the most direct way to describe where CRPS falls out on the spectrum is to repeat what Jim Broatch (who runs the show) used to have almost on the RSDSA masthead: Most of our endowment is from memorials. I've also read from a number of sources that the pain can be worse than that of metastasized cancer. Maybe that's a little too direct. . . .



Mike
Mike,

I'm shocked and humbled to hear such kind remarks about my writing. I've always managed to write decently I suppose, but it was always forced, and never "beautiful" by any stretch of the imagination. Until recently, writing has been extremely difficult for me, and I still struggle with just letting it "flow". But as unfortunate as the subject matter is, and I wish it didn't need to be written about to begin with, your praise has made my day (and you know better than most how tough a job that is). Thank you so very much friend!

p.s. again, my new focus in all this RSD/CRPS "nonsense" is to find a silver lining wherever I can- and it's actually quite exciting when I do-try it! (the child in me comes full-force, it's really a mood-booster). Silver lining found today? I've realized in the face of everything that has been going on, writing has become not only much easier, but extremely cathartic. And the fact that others' may enjoy reading my little bits of "work", is beyond thrilling!
SnowWhyte is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (12-17-2010), fmichael (12-17-2010), Sandel (12-17-2010)
 

Tags
crps, rsd


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Went Downhill and Can't Get Back Up azoyizes Multiple Sclerosis 8 08-27-2010 07:16 PM
Normal EMG and Normal Skin Biopsy means... filipe Peripheral Neuropathy 17 12-13-2009 10:45 AM
Myasthenia Going Downhill Llakel Hart Myasthenia Gravis 8 11-25-2008 11:31 PM
Am I going downhill fast, or does everyone feel 100% worse in hot, humid weather? lefthanded Peripheral Neuropathy 19 09-21-2008 10:07 AM
Body Going Downhill - ALS? Other? MountainView Neuromuscular 8 03-23-2008 11:48 AM


All times are GMT -5. The time now is 02:22 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.