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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Yes its normal but without the drug I'd be in serious pain!
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#2 | |||
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Senior Member
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If you don't mind my asking, what sort of dose do you take? I know everyone is different...but maybe if I could get the dose right it would actually help with the pain.
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#3 | ||
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Junior Member
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I took it several years ago and I was on the same dose as you, only I couldn't do anything but sleep. I slept at least 16-18 hours a day. WHen I was awake I couldn't put sentences together, couldn't talk, couldn't put my thoughts in order, it was horrible, I came off it and haven't been back on, It did nothing for the pain and I decided I would rather be able to think and put sentences toegther and be awake then to sleep my life away in a drug induced trance.Part of my decision was the doctor's office reaction when I called them about the side effects and the the doctor actually said someting about being on a baby dose and I needed to grow up. Needless to say I didn't go back to see him either. I wish you much luck in trying to decide what to do.
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#4 | ||
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Member
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i take 300 4 times a day and then my dr increased it to 400 4 times a day. for it to be effective some people take 3000 mgrs a day. it makes me too sleepy. i stopped taking it and now my pain is way up. i didnt tell my doctor i stopped i just told him my pain was way up. now im going to have to go on it again...i was taking caffine pills to stay awake and they barely helped. now i dont want to have to go back on it but i may not have a choice
![]() Lori
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Wishing you a day of pain free movement that turns into forever! |
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