Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-20-2010, 04:33 AM #5
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cindi1965 cindi1965 is offline
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cindi1965 cindi1965 is offline
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Join Date: Jul 2009
Location: West Virginia
Posts: 375
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Originally Posted by CarlaDanDan View Post
Thank you for your opinions!!! i also believed that pain is something real, and i agree that therapy helps to cope, but unfortunately didnt make it yet to magically disappear my pain.
I am in England, and did not have a MRI since got injuried, never visited a neurologist (NHS cutting costs). I had an EMG looong time ago, that showed Peroneal complications... I also received RF denervation. I have little information from doctor about my true diagnosis, except that talk in the past at Pain Clinic. Really learning from Internet, leaflets and support groups.

The symptoms at right lower leg, most concentrated on the foot, include stiffness, extreme temperatures sometimes is burning hot and some days like today is icing freezing cold, the nerve pain, pins and needles and constant numbness. Very poor circulation, lacks mobility, the swelling is low most of days, and sometimes i get cramps. My balance is bad, i describe my walking as a duck one! Since the accident there was improvements on sensations, moves, skin colour, pain and sweeling, all lessen, but still present and no improvements anymore, for two years now.

Im on Gabapentin 300mg and Tramadol 50mg 4 times a day. They can help to control the pain, but the stiffness never goes away and temperature is always different than good foot. I reduced my tablets with the help of weekly acupuncture sections (i highly recommend acupuncture to everyone who suffer with Pain). This winter pain and coldness is worsening and im question myself if i did right in reducing...
I will see a GP next 30th and will ask for referral to Pain Management (but i doubt he will give me) Its a lotery get appointments with specialist here. It was told me that to acess a private doctor is very expensive.

sorry for the long message, every help is very welcome
thank you for your support and patience in reading
lots of love
Try asking for Baclofen for your stiffness. I have Cerebral Palsy and I have been taking it for years. I don't have the stiffness that other people have with their RSD. I was diagnosed 2 and a half years ago. It's too bad that you haven't seen a neurologist, because that is key with CRPS/RSD diagnosis, however I no longer see my neuro, because my GP does a better job at controlling my symptoms as he has MS.
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