Hi mellemmel,

Entraped nerves are a tricky area. Mine are in the elbow and did have a Ulnar nerve entrapment which might have caused some neuromas. All I can tell you is be very careful who you allow to do any type of nerve surgery. I'm not going to go into my whole long story but after many surgeries, many RSD procedures including Ketamine I finally go off most of the meds. my arm was back to 90% good functioning but still had this strange relentless pain in the elbow. So a neuroma was mentioned by one of my doctors my surgeon did not agree did not want to do a surgery to try and find something but did it anyway, as my pm doctor stated " I had to beg him to do it". I should of listened to my surgeon when he said NO. And honestly it made the pain worse and 4 years later I'm still searching for an answer of what this pain is. Everyone agrees it's some type of nerve problem but what type and can not been seen on any films.

I have been communicating with a doctor who teaches at John Hopkins and has his own Periphial Nerve Center in MD for about 2 years. But I not ready to jumb into the arms of another surgeon.

Gabbycakes

Thanks Gabbycakes,
It is bad enough when those in contol of our physical well being take risks, think they know it all, want to try something yet don't have to suffer the consequences, and those of us who have yielded to their supposed 'knowledge' and experience(?), sacrifice our days and nights, our minutes and hours, and submit not as much to the Drs as to the constant drive within us to rid ourselves of this that has taken up residence in our bodies and the hope we have of being restored to what we once were. Then to find the results have set us back into worse circumstances or sometimes even worse to have no change at all.

There seems to be redemption of our seemingly wasted sacrifice on some level when we can share our experience with someone else who might benefit from lessons learned on our own journey.

Thank you all on this forum who are willing to share your defeats, failures, attempts at grasping for the golden cure, so that those who come behind you might gain wisdom and insight from your trials.

My own experience was that within days I had more info than I could process after months of searching on my own and coming up with little or nothing of any account. And the knowledge and wisdom here comes with compassion and friendship as an additional balm applied to the wound this RSD has made to our spirit.

Thanks again Gabby, and all for offering a hand up to those who are low.
With hope,
pat e