Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-18-2011, 11:26 PM #1
renhenne renhenne is offline
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Confused SCS info needed

I have just been informed by my Dr @ Mayo Clinic that I am in need of an SCS Implant. The injections have not helped and this is my next step. I have RSD in my left leg from the knee down and has recently jumped into my right foot.
I have read that placement of the battery has caused some discomfort for some people. I also have read that as with all treatment with RSD patients, what works for some may have different resusults for others. I am only asking for you to share you personal experience if you want. I am scheduled on February 11th and would love to have some questions to be able to ask the Dr's before hand.
Thank you so much my RSD family. Peaceful sleep & gentle hugs,
Renee'
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Old 01-19-2011, 09:46 AM #2
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Smile Hello Renee

I just wanted to let you know that there is a whole sub-forum here at NT full of good info on SCS. It's very active and lots of folks have their stories to share.
The SCS Forum is in the main menu listed under the "Medications & Treatments" section.....here is the direct link to get you there....

http://neurotalk.psychcentral.com/fo...ysprune=&f=118

Hope to see you there!

Caring
Rae
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Old 01-19-2011, 10:19 AM #3
renhenne renhenne is offline
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Are,
Thank you for the info, I will check it out. Peaceful dreams & gentle hugs,
Renee'
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Old 01-19-2011, 10:01 PM #4
Lisa in Ohio Lisa in Ohio is offline
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Hi Renee, I had m trial in December and will be having my "real" implant done next Tuesday. The best question I asked my doc was to tell me what I needed to know. He really went through how the procedure worked and gave me a lot of great information. I do need to tell you that you will be very sore for several days afterward. I missed 4 days of school and I never miss class. What I need to ask now is how to get through airport security and if I can go to the chiropractor after the implant. I had a really good trial with about a 50% reduction of pain. I wish you well with yours, Lisa
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Old 01-20-2011, 01:25 PM #5
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I had a SCS for 3 years. I go the chiropractor 3 days a week and did the entire time I had the SCS. The airport was not a problem. I just showed the card they gave me.

Best of luck to you both,
Sherrie
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"Thanks for this!" says:
Lisa in Ohio (01-20-2011)
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rsd, rsd and nerve stimulator, scs implant


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