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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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01-21-2011, 06:02 PM | #1 | |||
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Hi there,
It's been awhile, hopefully some of you will remember me. My surgery didn't go as well as we'd hoped. Well, it did and it didn't. I have gotten some function back but unfortunately the pain is so bad that I cannot use that function due to the pain. At any rate, I have a medical alert bracelet but I'm thinking that I need to go ahead & update it to reflect my CRPS. I've recently developed a latex allergy anyway, so need to have it updated regardless. I just realized today when a doctor unfamiliar with my case went to *grab* my leg that I could be in for some serious hurts if someone did something similar if I were unconscious or otherwise unable to communicate. So, do any of you have this on a medical bracelet? Do you just have your condition's name? I worry since so many people seem so unfamiliar with it. Just the initials? The whole name? See wallet card? What else? Thanks. |
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01-21-2011, 07:41 PM | #2 | ||
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Senior Member
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Patty,
So sorry that your surgery was not a success, hopefully over time things will improve.... Where did you get your bracelet from? I have an orange "RSD Awareness" bracelet that I wear. But I think I should be wearing one that is the medical alert slyle that you are describing. Thanks, and I sincerely hope you start to feel better soon. XOXOX Sandy |
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01-21-2011, 10:32 PM | #3 | |||
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Hi Sandy,
So nice to hear from you! I remember you! The awareness bracelets are nice for sure. The problem with them is that if you're find unconscious or otherwise unable to communicate, emergency personnel have no way of knowing whether you personally have CRPS/RSD or whether you are just supporting a friend or loved one who does, know what I mean? This is the kind of bracelet I currently have: Medic Alert bracelet but then I recently found this gal's online shop: HillCountryIDeology and have really fallen in love with her work. And you know, having an excuse to buy jewelry and all I will take full advantage of it! I figure I deserve it after the past few months. But given the serious nature of these pieces, I do want to make sure that I go beyond the beauty to the actual utility and get the wording correct as well, you know? |
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01-22-2011, 07:55 AM | #4 | ||
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I've often wondered wether I should be wearing one. My crps is my left hand/arm. I can't imagine what woud happen if I couldn't tell someone not to touch it.
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01-22-2011, 09:41 AM | #5 | ||
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Senior Member
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Gratuitous self promotion..........
Can't help you on the medical alert bracelet, but some members here make RSD awareness bracelets. Feel free to pm me for info on bracelets like in my sig. There is another poster here, Cindi1965, who makes european style RSD awareness bracelets (Pandora, Troll, Biagi style)
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. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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01-22-2011, 09:48 AM | #6 | ||
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Senior Member
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Welcome back PP,
I'm sorry the surgery didn't work out for you......a familiar problem for many RSD'ers. I'm thinking instead of just writing RSD or CRPS on the bracelet tag, you should make it RSD (L)leg to alert medical personal where the problem is.
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. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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"Thanks for this!" says: | stressedout (01-22-2011) |
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