And on the first try, with no attorney assistance. It's good to know that the diagnosis of RSD/CRPS is finally getting the recognition it deserves.

I hope that this encourages the rest of you who are in the process of applying or considering applying. Be thorough, and keep records of EVERYTHING, even if you don't think now that you'll need them.

Congrats...


Gabbycakes

I was also approved on the first try with no lawyer. Congrats to you!! I know that must take a little weight off your shoulders....really happy for you. I agree that documentation of all your diagnosis is key. I had records from over 10 doctors. I travelled to TX for 6 months to see Dr. Rhodes & saw him 7 days a week while I was there. So, I was fortunate to have daily documentation for months & lots of docs agreeing that there was no way I could work. It is such a frustrating process , which is the last thing us RSDers need. Those of you still trying......keep at it! Don't give up!!!

That's awesome news PP !

I remember that sense of relief !

That is awesome news. yes I remembered when I got approved too it was a awesome feeling. yes importantly save and ask for every paper copied.

Congratulations! It took my wife some years before she was approved last nov-2. She will receive 3.5 years back pay but have not seen a dime yet. She has received her medicare coverage.

congratulations!
I need encouragement to apply for my Disability Living Allowance here in UK.
I have the application form at home, there is so many questions!
i dont feel ready to apply and go through the process, so I postpone my claiming for now. but in few months i will send those papers! I heard that many RSD patients were denied here, and its just great to know you were granted yours in USA. Its a sign of recognition and respect from authorities for what we have been through.
thanks for sharing your victory!
lots of love
Carla

I just sent mine last week and had my phone conference. The SS people are much more pleasant, so far, than the Dept of Labor.

There is hope. Thanks for the encouragement.
pat e

You're welcome. There is indeed hope. Seeing our disease legitimized, recognized by national entities such as Social Security and the National Organization of Rare Diseases, helps in the face of those who still think we're somehow making this up. I only wish that I were..... Like I told my husband yesterday, yes, the extra income from SS is helpful, but it's not like I could feel well enough to spend it anyway. If anything, we'll likely end up spending it on someone to assist with caretaking.

Thanks for the morale booster and congratulations. I applied with no lawyer help and was denied in December on my first try.

I was dx 9 months ago with RSD in upper and lower limb after sympathetic blocks helped the burning, sweating and sensitivity. Since then those issues have not returned (yeah!) but I still have chronic back pain. My lumbar MRI now shows additional bulges and a tear that were not there a year ago. The steroid injections I've gotten have helped immensely. My pain dr said the injections last 3-6 months. I can sit, stand and walk, although not all day, so I really question if I'm disabled in their eyes.