And on the first try, with no attorney assistance. It's good to know that the diagnosis of RSD/CRPS is finally getting the recognition it deserves.

I hope that this encourages the rest of you who are in the process of applying or considering applying. Be thorough, and keep records of EVERYTHING, even if you don't think now that you'll need them.

Congrats...


Gabbycakes

I was also approved on the first try with no lawyer. Congrats to you!! I know that must take a little weight off your shoulders....really happy for you. I agree that documentation of all your diagnosis is key. I had records from over 10 doctors. I travelled to TX for 6 months to see Dr. Rhodes & saw him 7 days a week while I was there. So, I was fortunate to have daily documentation for months & lots of docs agreeing that there was no way I could work. It is such a frustrating process , which is the last thing us RSDers need. Those of you still trying......keep at it! Don't give up!!!

That's awesome news PP !

I remember that sense of relief !

That is awesome news. yes I remembered when I got approved too it was a awesome feeling. yes importantly save and ask for every paper copied.

Congratulations! It took my wife some years before she was approved last nov-2. She will receive 3.5 years back pay but have not seen a dime yet. She has received her medicare coverage.

Really?? I wonder why? I was approved on Tuesday & got my back pay today.

As everyone else has said, I can't help but reiterate: KEEP YOUR RECORDS. Politely but firmly insist on copies of everything, even if you don't think you'll need it. We found our copier-printer-scanner to be very useful. We have scanned backups every every single record also.

We had many issues with doctors, hospitals, etc. not sending records, but since we'd gone personally and gotten so many, we were able to hand carry a huge stack (like 5 inches tall) over to our local Social Security office). I really think that made a difference.

Also if you haven't already, start keeping a log of every single doctor's appointment, therapy appointment, ER visit, etc., along with a complete list of every medical provider. You'll find it very helpful, and you won't have to go back through the painful process of recreating it later. (Ask me how I know.... )

If RSD/CRPS has gotten to the stage that it is preventing you from your daily duties, or you suspect that it may in the near future, I encourage you to at least begin investigating the process. It takes time (I have never heard of a case being approved as quickly as mine, in fact), but it's worth it in the end, especially when you've been paying into it your entire adult life.

I can only assume it could be some States may take longer and or her case goes back 4 years. Since she will receive 3.5 years back pay I guess this could hang things up perhaps. One reason, I was told, is SS wants to make sure she did not collect SSI or some other benefit such as WC, medicaid etc. in which she did not.

congratulations!
I need encouragement to apply for my Disability Living Allowance here in UK.
I have the application form at home, there is so many questions!
i dont feel ready to apply and go through the process, so I postpone my claiming for now. but in few months i will send those papers! I heard that many RSD patients were denied here, and its just great to know you were granted yours in USA. Its a sign of recognition and respect from authorities for what we have been through.
thanks for sharing your victory!
lots of love
Carla

Oh, I bet that is it. I think I heard that SS is a federal program but it is administered by the individual states, now that you mention it.

That just stinks.