Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-30-2011, 12:58 PM #1
keep smilin keep smilin is offline
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keep smilin keep smilin is offline
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Heart Hello everyone...

Quote:
Originally Posted by CarlaDanDan View Post
I met my partner in a dating for disabled website few years ago. Its been a long road, full of love and mutal learning. And i believe this will be a work in progress untill our lives end... we are a very young couple, he is kidney transplanted, has cataract and corneal erosion on both eyes. i have neuropathy,RSD, all the side effects and emotional issues that comes with our condition. He deals better than me with his health but today we respect each other and never underestimate each others health. Theres no worse or better, we all have our weakness, and healthwise theres no place to comparisons. we sum our strenghts and share to make our life a happy one as much as possible. Dividing tasks, taking care of each other in what is needed, finding a different ways to have a pleasurable intimate life, having a good laugh, wipe the tears on those bad days and having our own space... all this together help to manage stress. Argues are rare nowdays, sturboness never win, we have to find a point of mutation, where we can agree. One like red, and other blue, that has to be fine. Diversity and differences can make life more interesting and richer, when we leave the heart talk and put the ego to sleep. I try to find a point to replace boredom, frustation with understanding, gratitude and excitement in little things in our life together.
Its not simple to be a disabled person and a carer of our loved ones, but inconditional love guide us. Patience, creativeness, willing to support and respect. And fundamentally having knowledge about the other condition; theres no need to be an expert, just knowing what is, symptoms can explain a lot and bring us confidence.
I hope you and your loved one find your way. Yes life can be more liveable, believe me
lots of love
Carla
It's what is in your heart that will get you thru..That love runs deeper than no other and no matter the depth of our pain, the type of day we are having or what ever tomorrow brings..if you rely on the simple heartfelt love..You will make it..oh yes, and with the complications of RSD and life ..we all need to have something solid to lean on.. a sure bet! Bless you all..find the peace in your hearts.. and stay strong, as we all need that.. Thank you for all of your kind words!!

Hugz, Kathy
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Old 01-30-2011, 02:57 PM #2
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Default HI CarlaDanDan

Quote:
Originally Posted by CarlaDanDan View Post
I met my partner in a dating for disabled website few years ago. Its been a long road, full of love and mutal learning. And i believe this will be a work in progress untill our lives end... we are a very young couple, he is kidney transplanted, has cataract and corneal erosion on both eyes. i have neuropathy,RSD, all the side effects and emotional issues that comes with our condition. He deals better than me with his health but today we respect each other and never underestimate each others health. Theres no worse or better, we all have our weakness, and healthwise theres no place to comparisons. we sum our strenghts and share to make our life a happy one as much as possible. Dividing tasks, taking care of each other in what is needed, finding a different ways to have a pleasurable intimate life, having a good laugh, wipe the tears on those bad days and having our own space... all this together help to manage stress. Argues are rare nowdays, sturboness never win, we have to find a point of mutation, where we can agree. One like red, and other blue, that has to be fine. Diversity and differences can make life more interesting and richer, when we leave the heart talk and put the ego to sleep. I try to find a point to replace boredom, frustation with understanding, gratitude and excitement in little things in our life together.
Its not simple to be a disabled person and a carer of our loved ones, but inconditional love guide us. Patience, creativeness, willing to support and respect. And fundamentally having knowledge about the other condition; theres no need to be an expert, just knowing what is, symptoms can explain a lot and bring us confidence.
I hope you and your loved one find your way. Yes life can be more liveable, believe me
lots of love
Carla
EXCELLENT!!!!!

i acutally feel foolish submitting that post now, it was just a day now it passed or maybe its from reading all these great post , and yes sturboness never wins , very true... i very much enjoyed your post, you are a kind caring person and with a great positve attitude which i have most everyday that day i posted must of been one of the Not so days. but im on track now.. thank you .
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"Thanks for this!" says:
CarlaDanDan (01-30-2011)
Old 01-30-2011, 03:43 PM #3
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EXCELLENT!!!!!

i acutally feel foolish submitting that post now, it was just a day now it passed or maybe its from reading all these great post , and yes sturboness never wins , very true... i very much enjoyed your post, you are a kind caring person and with a great positve attitude which i have most everyday that day i posted must of been one of the Not so days. but im on track now.. thank you .

Linda
im delighted to here that you are on track now! We all have those lousy days when its difficult (almost impossible) stay positive
Its never a foolish thing write in here, I found loads of support here too. From time to time i've read few posts wrote by me/and others. Re-reading to "re-charge my batteries" we are on the same boat at end of the day.
Thank you for your friendship.
lots of love
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