Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-29-2011, 05:23 PM #7
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Perhaps you can have the nurses help you get a referral to a pain management doctor? A good nurse or PT can be a goodsend, my PT helped me more a few years ago than any of my other providers put together. Doctors only have so much time to spend with patients....

Try to find someone that you can relate to who knows the system over there. Getting in front of the right people right now is key.

A wonderful resource for you might be our dear sweet friend Ali, who used to talk with us often but is not on the boards too much lately. See if you can find a post by her and then send her a personal message. She lives in the UK and has had RSD for a number of years.

Good luck and keep in touch, Sandy

Quote:
Originally Posted by Dizzygirly View Post
I try to stay possitive but over here the doctors seem to get fed up off seeing u after a while , I don't see any pain management doctors here I just see pt nurses who work in the pain management unit , I feel the crps spreading up from just my foot to the rest of my leg I got told by a specialist I had to see for the accident I had that recovery after two years would only be fifty percent and not a full recovery
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