Can I get better after having crps for two years please someone. Xxxxx

HI Dizzy, The bad news is not totally healed, but in some cases remission can be attained. Keep your chin up, research the many treatment options that are available, and mostly find yourself a good pain management doctor that you can build a trusting relationship with. Glad to meet you, Lisa

Hello dizzygirly,
I'm a newbie here, but just a bit of reading and you will discover many who have had RSD 10, 15, 20 years. I've just past the one year mark and my doc is still hoping to rid me of this dastardly disease. I'm trying to learn to deal with it one day at a time, one of my keys is to avoid things and people/conversations that get me worked up and stressed.

I'm sorry you have the credentials to join the group, but a kinder group of people you will not find anywhere.

pat e

Hi there thanks for your replys , I am still , suppose morning the loss of my life as it used to be can't get used to the fact that there are things that I can't do things that I used to take for granted like walking my wonderful kids to school and then picking them up at the end of the day being the first person to see them after the long day at school, hearing there news being given all their bags and stuff , but then on the other hand I feel guilty for feeling this's way there are people out their that have life threatening illnesses and are getting on with life without moaning about it .

Dizzy -don't ever give up. I got hurt in Nov 2006 and it took me until the summer of 2010 to get back on my feet again. I'm not perfect. But things are greatly improved. I have done almost every treatment for RSD - Do you have ketamine in the UK? Out of everything I tried, it is by FAR the most effective.

The best of luck to you, Sandy

I try to stay possitive but over here the doctors seem to get fed up off seeing u after a while , I don't see any pain management doctors here I just see pt nurses who work in the pain management unit , I feel the crps spreading up from just my foot to the rest of my leg I got told by a specialist I had to see for the accident I had that recovery after two years would only be fifty percent and not a full recovery

Perhaps you can have the nurses help you get a referral to a pain management doctor? A good nurse or PT can be a goodsend, my PT helped me more a few years ago than any of my other providers put together. Doctors only have so much time to spend with patients....

Try to find someone that you can relate to who knows the system over there. Getting in front of the right people right now is key.

A wonderful resource for you might be our dear sweet friend Ali, who used to talk with us often but is not on the boards too much lately. See if you can find a post by her and then send her a personal message. She lives in the UK and has had RSD for a number of years.

Good luck and keep in touch, Sandy