Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-06-2014, 11:43 AM #1
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eevo61 eevo61 is offline
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eevo61 eevo61 is offline
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Join Date: Aug 2013
Location: California
Posts: 389
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Default Hello everybody,had a date for my gallbladder surgery!finally

I'm been real busy,checked all new post but was not able to reply any,I had quite few difficult days,my daughter had to have a surgery to remove her four wisdom tooth,our insurance will expired this month,we had to to dr check ups,dentist,ophthalmology , ob gyn,preop ,everything all together almost,she is doing fine,manage the pain and discomfort lucky she was on spring break unfortunelly she has to deal with all things at once too,at least she did not miss her university classes,she is on 3rd year biochemistry ,next fall will be her 4th year,only 20,very proud mom,is been difficult when you have small kids I only had her,so we are close with my husband too, to me was very important since the beginning of my ordeal for them to understand what was happening,glad they did,is hard when I had bad days and lately couple meltdowns which they try to manage the best they can,my way of think is you had to prepare your family,close ones at least with the worse case scenario even if things get better I tried since I was ok to make them independent always telling them that you never know,own day I won't be able to do everything,unfortunelly that day came after my injury,there are so many things I did not expected but happened,I'm out of work now,my company decided they can't accommodate me, and independent md determine I'm permanent disable but not sure exactly how much I can or can't do,so no job,no benefits for now,no medical insurance,my family got affected too,had that gallbladder problem adding to my already difficult situation,Tuesday is finally my surgery,all confuse about so many things,wondering who did the mistake regarding my disability status,I saw the iMe on jan 19 he knew I will had surgery to reposition my scs generator on jan 20 and my primary md apparently release me to work the same week when I was schedule for a surgery that I'm still recovering for,but because iMe said on jan 19 he review my case and declare disable I lost my ttd and sent me to pd which I mentioned before with 230 dollars weekly,so hard,my husband work part time,because of my scs I can't drive,if I do I have to turn it off and pain get back immediately ,I went back 3 weeks ago to an ankle brace,so far md did what they can and while crps is not control I won't be able to have the fusion surgery on my right foot so my bones will keep rubbing against each other,with the gallbladder surgery that took me by surprise I just add more strees to my already tired days,I'm complaining a lot lately,yes,I know there are more people with more serious issues,even those who lost their relatives,very sorry to heard that,my prayers are with all the family and also with our family here at nt,I tried to avoid some of my relatives with the new surgery news,I notice everytime someone ask me how I feel quite few of them get annoy and decide to leave the room or the area where we are talking,people get tired of hear others people problems,I don't blame them,is not their pain and hope never will,but that also affected us, ignorance is so powerful these days,gosh,I guess there are some humans been if u can call them that who really need to learn how to understand people suffering and not just turn around and prefer to ignore us because after all that subject to them is boring,I get it,but at least when I don't want to heard something I learned to listened and at least be there even if I don't talk,maybe I won't give a good advice but at least I won't turn around and think that after all that's not my problem,I read couple of post of you guys getting accidents,new treatments,want to know how is everyone,Renee how you feel now,Vrae how's you new medical treatment I had 7 symphatic lumbar blocks did not work for me,only lasted one or two days and like Nanc mention I expirience such of headaches after,neck and back pain,but we all react different,Nanc how is your foot no more child stepping on it,hope you are ok now,since my injury I'm really paranoid,I avoid all kind of people rushing and kids running just because I'm afraid to get hurt again,Renee I had not read any posting after your surgery,sure you doing better,I will let you guys know how is mine,I missed this time I spend with you guys,there are more brothers and sisters I did not mention,by they way hi Az-Di ,blambledog,zookester,KimA, I can't remember all your names but I know you are here with and for us thanks and sorry for not been around,like I said been real busy and really struggling with everyday living like this,just waiting for the next day to be better, blessings to all your friend Jesika
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Last edited by eevo61; 04-06-2014 at 11:50 AM. Reason: Missing info
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