I'm been real busy,checked all new post but was not able to reply any,I had quite few difficult days,my daughter had to have a surgery to remove her four wisdom tooth,our insurance will expired this month,we had to to dr check ups,dentist,ophthalmology , ob gyn,preop ,everything all together almost,she is doing fine,manage the pain and discomfort lucky she was on spring break unfortunelly she has to deal with all things at once too,at least she did not miss her university classes,she is on 3rd year biochemistry ,next fall will be her 4th year,only 20,very proud mom,is been difficult when you have small kids I only had her,so we are close with my husband too, to me was very important since the beginning of my ordeal for them to understand what was happening,glad they did,is hard when I had bad days and lately couple meltdowns which they try to manage the best they can,my way of think is you had to prepare your family,close ones at least with the worse case scenario even if things get better I tried since I was ok to make them independent always telling them that you never know,own day I won't be able to do everything,unfortunelly that day came after my injury,there are so many things I did not expected but happened,I'm out of work now,my company decided they can't accommodate me, and independent md determine I'm permanent disable but not sure exactly how much I can or can't do,so no job,no benefits for now,no medical insurance,my family got affected too,had that gallbladder problem adding to my already difficult situation,Tuesday is finally my surgery,all confuse about so many things,wondering who did the mistake regarding my disability status,I saw the iMe on jan 19 he knew I will had surgery to reposition my scs generator on jan 20 and my primary md apparently release me to work the same week when I was schedule for a surgery that I'm still recovering for,but because iMe said on jan 19 he review my case and declare disable I lost my ttd and sent me to pd which I mentioned before with 230 dollars weekly,so hard,my husband work part time,because of my scs I can't drive,if I do I have to turn it off and pain get back immediately ,I went back 3 weeks ago to an ankle brace,so far md did what they can and while crps is not control I won't be able to have the fusion surgery on my right foot so my bones will keep rubbing against each other,with the gallbladder surgery that took me by surprise I just add more strees to my already tired days,I'm complaining a lot lately,yes,I know there are more people with more serious issues,even those who lost their relatives,very sorry to heard that,my prayers are with all the family and also with our family here at nt,I tried to avoid some of my relatives with the new surgery news,I notice everytime someone ask me how I feel quite few of them get annoy and decide to leave the room or the area where we are talking,people get tired of hear others people problems,I don't blame them,is not their pain and hope never will,but that also affected us, ignorance is so powerful these days,gosh,I guess there are some humans been if u can call them that who really need to learn how to understand people suffering and not just turn around and prefer to ignore us because after all that subject to them is boring,I get it,but at least when I don't want to heard something I learned to listened and at least be there even if I don't talk,maybe I won't give a good advice but at least I won't turn around and think that after all that's not my problem,I read couple of post of you guys getting accidents,new treatments,want to know how is everyone,Renee how you feel now,Vrae how's you new medical treatment I had 7 symphatic lumbar blocks did not work for me,only lasted one or two days and like Nanc mention I expirience such of headaches after,neck and back pain,but we all react different,Nanc how is your foot no more child stepping on it,hope you are ok now,since my injury I'm really paranoid,I avoid all kind of people rushing and kids running just because I'm afraid to get hurt again,Renee I had not read any posting after your surgery,sure you doing better,I will let you guys know how is mine,I missed this time I spend with you guys,there are more brothers and sisters I did not mention,by they way hi Az-Di ,blambledog,zookester,KimA, I can't remember all your names but I know you are here with and for us thanks and sorry for not been around,like I said been real busy and really struggling with everyday living like this,just waiting for the next day to be better, blessings to all your friend Jesika

Hi Eev, I am so happy you're surgery is finally scheduled for you! I will pray that it helps you to feel better. After my surgery I was really sore for a few weeks and couldn't sleep on my stomach. I had to rest alot more because the healing process takes longer because of our rsd. I had some acid attacks after the surgery in my stomach, and tried to still watch what I ate. It's been two weeks now and I'm scheduled for a follow up with my surgeon next week. I feel much better then I did with my stomach now, and though I'm still struggling with constant rsd pain, I am not getting as many flares like I had when I had my gallbladder and gallstones. You will be fine Eev. I'm here if you need to talk and am also thinking of you. Take care my friend and get plenty of rest even before your surgery. With love, Renee.

Hi eevo!

I was just thinking about you wondering how/where you are? So sorry to hear about your daughter’s oral surgery.. ouch! And a biochemistry major? umm, yeah I guess you are a proud mama for sure! That’s fantastic!

I will keep you in my thoughts and prayers on Tuesday hon that all goes real smooth and that you’re in and out in no time at all and without incident. Be sure they keep your pain under control while you’re recovering. Any idea how long you will be in the hospital? Will you have access to the internet while you’re in there? Just wondering how long until we will hear from you and get an update?

I start my treatment a week from Tuesday. I have to do something eevo or it will render me unable to use my right arm and hand soon (my dominant hand). It is also getting into my neck, face and scalp pretty good too. The legs have been an issue for years, and the spread has been gradual all over for years now, but the pain in my upper body over the last few months is really bad. So rather than have it consume me, I am going to start to try some things other than just oral meds.

Again, best of luck to you on Tuesday!! I will be pulling for you! Vrae

Thanks,you are always so kind and thoughtful,I know you always worry about us,well tomorrow I will get a call from the hospital with specific instructions about the procedure on Tuesday,so far, my dr told me it will be an outpatient surgery unless something came out the way,fingers cross ,I don't need anything else for now,the problem is that my scs generator is on my left side of my abdomen so they need to do some modifications for my laparoscopy and can't use robot as well , the incisions will be 4 but he also said that because he scs location he has to change the cutting areas but is a simple procedure according to him,to us is huge and big deal,we don't need any pain or discomfort at all,you are right,avoid pain during recovery.in your case,I'm sure you did all the research you could keep in mind,every body reacts different,I hope your body handles better the blocks,and even if this sound scary,watch some videos,like a said before,you will or might cry,denied the idea of getting then,but after all that's what next and you need to be prepare for anything,we are many patients that went through that procedure that we can support you,but is really very emotional every time you think in not been able to move or do at least a basic shore,I understand you very well,but also because I went in that situation before a assure you,sometimes dr rush us and make us believe that is nothing else outer,I tried medications,lumbar blocks,psychical therapy,acupuncture ,yoga light yoga still help me little bit,meditation also helps me, but is a mental battle just to Think how much you which to be not normal completely but at least feel fine,do what ever it takes but don't risk more your condition if you have any doubts just wait,you know,the heart has it reasons ,so listen to any sign,hope you get well soon,I will let you guys know as soon as an able how everything went to,and please,keep the prayers for all of us as usual and never let that light of that candle call hope extinguish ,we all keep the hope,one day we will be fine,no soon,but one day,blessings and biggggggg hugs. from jesika

Thanks,I'm happy you are doing much better,well I'm getting ready for mine soon,kind of nervous but thanks to you I already know what to expect ,I will let you know how I'm doing as soon as I can,I know crps/rsd is so difficult and very hard for some people to understand,lucky for us we had each other,no one else understand anything related to this condition but us,I'm glad to have you and all our friends here at nt to support and listen to each other,that totally changes my days,thanks,hope to talk to you all soon,blessings from your friend jesika

Best of everything..I hope everthing gones well that day for you..take care

Good luck, Jesika. I hope everything goes smoothly and you are feeling better soon. I'm sorry you and your daughter had to rush through your doctors' appointments but it is good that you got them done while you still have insurance.

I'll be keeping my fingers crossed for your surgery.

Eev; I hope for the best possible result for the operation and no "additional" pain to your present condition. I have had my wife from day one and without her I would not be writing this to you. She slept in every hospital room, both rehab hospitals and attended every appointment of mine for several years. She is and always has been my wife my crutch my friend my lover my helpmeet and my nurse. I trust you have the same support. The best way to handle those who are not understanding of your pain is to leave the conversation graciously such as go for a drink of water and never come back. I truly hope things improve for you a hundredfold eev and for your daughter also. Soft gentle hugs and a warm heart from another rsd carrier.

Thank you KimA for taking the time to write me,your so kind,and by the way your good wishes came so fast considering your in London just kidding,I'm glad to have personal contact with you,i always checking your postings too,it a lot of information from your side ,so much to learn,we are all still learning so our daily school session is growing together with our up growing rsd/crps family,sad but real unfortunately ,I always said that we are lucky for having each other,so today I added to my brother/sisterhood family more members,thank you to you all for your time ,kindness,for worry about my daughter too,I do appreciate that as well more than anything and as soon I can I will give you the good news,that's what I expect good news,so soon I will say hi again to you all,blessing from these side of the planet never ever though I will said that but I'm really happy because all of you,thanks,blessings your friend Jesika
P.s hope you understand my English at least I'm not speaking ,English is my second language,spanish is my first but I tried my best,hurts when I noticed misspellings,with you I guess will be more embarrassing but I will try still,just ignore my deep accent

Is so encouraging having so much support and best wishes From you all,my friends,I will take care,I promise and I'm hoping only to post nice replies in the future telling you guys how well I'm doing,that's my goal,so I will rest and try to recovery no fast but safely ,soon I will write and we will laugh about how worry I was the day early still fighting with the emotions but I'm craving to many things to eat will ate but I had to and wait little more so ,thanks and blessing to you and your family, your friend jesika