[lorigood243]

It just occurred to me to ask this question. I have internal RSD ...after i had my second abdominal surgery to remove a bunch of swollen tissue (this was before i knew i had RSD) any way my body went crazy and i developed all kinds of conditions. I just realized along with my list of physical problems, i am allergic to every kind of seafood, shell fish everything in the sea! My husband ate oysters once and hours later i kissed him and my lips swelled up and waqs rushed to the ER for big doses or prednisone and benedryl.

Just wondering if anyone else has allergies that they didnt have before RSD arrived in your life.
thanks
Lori

[gramE]

Originally Posted by lorigood243

It just occurred to me to ask this question. I have internal RSD ...after i had my second abdominal surgery to remove a bunch of swollen tissue (this was before i knew i had RSD) any way my body went crazy and i developed all kinds of conditions. I just realized along with my list of physical problems, i am allergic to every kind of seafood, shell fish everything in the sea! My husband ate oysters once and hours later i kissed him and my lips swelled up and waqs rushed to the ER for big doses or prednisone and benedryl.

Just wondering if anyone else has allergies that they didnt have before RSD arrived in your life.
thanks
Lori

Wow, so much for a romantic moment. Just gets in the way of everything doesn't it!

I believe that my mouth is much more sensitive to seasonings. Burns my mouth with too much. I lean much more to the bland side of life now. Enough fire in my feet, I don't need to spice up my food!
have a great night,
it is 6 degrees here right now.
time for the heating pad.
pat

[Jimking]

No more blue crabs, lorigood? Oh, I wouldn't know what to do if that happened to me. I wonder if doctors who specialize in the field of allergies can help with those issues perhaps?

[AintSoBad]

Sorry to hear this...
Until you get to your doctor about this, I suggest you have some benadryl at home and in your purse!

Be Well!

Pete

[lorigood243]

I have had a full allergy work up and the dr said you are allrgic to everything in the sea! stay away. i even take prednisone everyday for the RSD swelling and still if i get near sea food my lips and face swell...its crazy. I cant even open a can of tuna for my kitty in fear of the juice touching me...so hubby handles it.
and yes my mouth is sensitive, like there might be little sore on my tongue but you cant see anything, so im careful about spice too.

I wish that someone would write a great book about RSD covering all these little problems that come up so we dont think we are crazy!
have a blessed day all
Lori

[whereisfunkytown]

I caught a common infection (c.difficile) while in hospital for CRPS that caused lactose and wheat intolerances. It led to chronic diarrhea, which means I have to avoid tomatoes, fruit, sugar, any processed foods etc. I was already a vegetarian, but who knows what else I would react to now? Incidentally I am now the size of a preteen . CRPS has really made food a lot less enjoyable, and made my mother-in-law crazy trying to accommodate my ever-shrinking list of permitted foods.

Alice

[lorigood243]

Alice
you have me thinking...gross subject but i have chronic diarrhea too and my dr cant figure out why and i have just been dealing with it...i didnt think about other food allergies..i love everything carb...i am very overweight and bed ridden too so losing weight has been impossible. i dont even know where to start or what to start cutting out. is there and RSD food list anywhere of things that make us less miserable then other foods? do you have a list you can send me Alice...im sorry to ask you to go out of your way but it seems like you can really help me,
Thank you kindly!
Lori

[whereisfunkytown]

Originally Posted by lorigood243

Alice
you have me thinking...gross subject but i have chronic diarrhea too and my dr cant figure out why and i have just been dealing with it...i didnt think about other food allergies..i love everything carb...i am very overweight and bed ridden too so losing weight has been impossible. i dont even know where to start or what to start cutting out. is there and RSD food list anywhere of things that make us less miserable then other foods? do you have a list you can send me Alice...im sorry to ask you to go out of your way but it seems like you can really help me,
Thank you kindly!
Lori

Hi Lori,

Yes, it is gross, but it's a pain in the butt , so it should be dealt with! I don't know of an RSD food list that relates to diarrhea specifically as most people experience constipation as a med side effect (I did for the first three years). Ask your doc to backcheck your files, and to test you for hospital transmitted infections such as c.difficile, which can lead to colitis. It is a bacteria that people pick up, complicated by taking certain anti-biotics that are resistant to it. It's pretty common, many are asymtomatic, but the aftereffects can be terrible, such as chronic diarrhea. I've had it for a year next month!

Here is what I have found helps and has taken me from 7-13 episodes a day to 2-3.

Avoid sugars. This means natural sugars as well, including fruits, juices, and sweeteners. I drink water, black coffee and drinks made from low sugar plants like aloe juice made with honey (delicious!). If you must have sweets, go for things made with the natural sweetener Stevia (can find in chocolate, foods, drinks etc in health food stores). Tomatoes are a fruit in this context, so out they go. When I disregard this rule, I pay for it.

Avoid processed foods. This will be really hard because you are not up and about, so look for a place online that provides fresh frozen healthy meals. Preservatives are really bad for diarrhea.

Avoid wheat and glutens as much as possible and see if this helps. This may or may not, depending on what your particular issue is.

Avoid dairy except hard cheese (cheddar is actually good, and yogurt with acidophillis provides your gut with flora to regulate digestion - eat lots of these!). I switched to soy milk and buy both the regular flavour and the vanilla, tending to use the vanilla a lot more because it's crazy good. However, the regular is necessary for some cooking. Soft cheeses and medium cheeses, including mozzerella are bad for diarrhea. People experiencing chronic diarrhea are often coexperiencing lactose intolerance or malabsorbtion.

I don't eat meat, so can't advise on that matter, but all the articles I have read on the subject state that it is difficult to process, so try limiting it if you can, and try only eating non-processed meats.

Start keeping a journal of your diet, the changes you make and the episodes and ask your doctor to refer you to a gastroenterologist. They should find the cause of this so you can better learn how to treat it. I'm sorry you are having such a hard time and hope you can find some relief.

Let me know if I can help any more!

Alice