Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-13-2011, 01:23 AM #1
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cindi1965 cindi1965 is offline
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cindi1965 cindi1965 is offline
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Location: West Virginia
Posts: 375
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So sorry that you and your family have to go through this crazy ride with RSD. You absolutely came to the right place to vent and get it off your shoulders. I can never reiterate that the board has saved me and my family. There is not one person on here that won't give you a shoulder to cry on, listen or just pray and give you the comfort that you need at the time. Please have all your family join, the more the merrier...no one judges here and it has been my saving grace...my prayers are with you and please come back often

Cindi
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Swatgen27 (02-13-2011)
Old 07-08-2011, 10:31 AM #2
elijjennings elijjennings is offline
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I am so sorry that you and your family are also suffering from RSD/CRPS. The amount of pain your brother must be feeling on a daily basis is indescribable. For me, if I was blind, you could not convince me that my arm was not filleted open bleeding out, hanging lifelessly next to me. I've begged doctors to cut my arm off, although now it has spread higher to my neck, and cutting off limbs doesn't get rid of RSD anyhow . I have recently had a SCS implant to try and help with the pain. So far it's not really helping, but I'm still healing. I have been able to "heal" the most by coming on these support groups and talking to a therapist weekly. I would strongly urge your brother to find a support group that HE feels comfortable expressing himself on. Just finding others that are going through your pain, and being able to relate to SOMEONE brings you such a sense of relief and hope. I will give you my email below, I encourage you or your brother to contact me just to talk about CRPS/RSD and how it affects the family.
Best wishes for you and your family,
Eli Jennings
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fmichael (07-08-2011)
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