Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-15-2011, 02:56 PM #1
loretta loretta is offline
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loretta loretta is offline
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Quote:
Originally Posted by SandyS View Post
My daughter takes dextromathorifen for her pain. it is compounded.
Also, my daughter was very young when she was diagnosed with RSD. It is not uncommon. You should look into Cleveland Clinic childrens pain rehabilitation program. It is essential that she learn to control the pain at a very young age.
I sent you a pm

Sandy
Hi Miller, I am so very sorry for both you and your daughter. I've read many children getting RSD for sports injury etc. Like yourself, I recovered following RSD following surgery. Over a year of physical therapy and massage therapyBut another injury brought it back. 4 years into it was diagnosed with RSD and confirmed with nuclear med test. The contrastdye is one means of diagnosing RSD. My diagnosis came from sports injury orthopedic Doc. I have for the past 6 years a neuro, psychiatrist, internist etc. well experienced Doc that is progressive doc. He is also a pharmacologist and his knowledge of medicine and neurology has helped me tremendously. He is conservative and after over 15 years of RSD, I'm on fewer meds and more physical exercise, and in better place mentally.
Hope for the best for your daughter and yourself. Your friend, loretta
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Old 02-16-2011, 04:54 PM #2
Millerprof Millerprof is offline
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Thank you all for your encouragement and kind words. Since I've been through RSD, I've been pushing my daughter to use her foot as much as possible, massaging it for her, having her rub it along different textured floors, doing Epsom salt baths, picking up a towel with her foot, putting my TENS unit on her, etc. I think I'll try to get her into the pain clinic that I went to--they were really great with helping me recover and they have a warm pool for pool therapy. I'll try to keep you all posted.
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"Thanks for this!" says:
kathy d (03-14-2011)
Old 03-12-2011, 05:21 PM #3
debbiehub debbiehub is offline
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debbiehub debbiehub is offline
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I know someone who had great success in Boston...Her son is now playing football again! I can put you in touch with her if you want-
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