Hi Dawn,

So sorry about your stomach. I take 100 mg of Topamax in the morning and 100 mg at night. I live on Tums, I especially like the tropical flavored variety. I also have a script for Zofran, but I don't think it does much for my every day stomach pain. I tend to just take that when I go for my ketamine infusions.

My stomach hurts all the time, too. Now I have a clue as to perhaps why. I thought it was because of nerves due to my job. Everything I eat and drink gives me indigestion. It stinks.

If you find a solution, please let me know. I am also thin, I had my BMI done last week it was 23.9. So I am not underweight, but almost. But I also walk a lot, so its not just the Topamax that keeps me at this weight.

Love and peace, Sandy

P.S. - when I try to go off Topamax my migraines come back also. I also went on the pill because I noticed that my migraines seemed to be hormonally related.

Hi Sandy,

It was actually because of some of what you said about Topamax that I tried it and really, it has been a lifesaver for my neck and head pain. I did have one very short lived migraine today (dark room, a fiorcet and moist heat and gone in an hour), but that was the first one in a month.

I didn't realize that you also had the daily stomach problems. I guess you feel much like I do, that the medicine is worth it.

I tried going to 100mg at night and 100mg in the am after we last spoke and I saw Dr. S but within 3 days I was in the ER the pain was so sever. I immediately dropped it down to 100. It took till yesterday to rule out all other stomach disorders including ulcers from all of my NSAIDS.

Have you noticed your pain is worse at any certain time of day? I notice mine is bad within an hour of getting up in the morning even though I take at lunch and dinner. I'm thinking having it in my stomach so long over night may not be a great idea.

I'm going to try to drop 25g off tonight to go down to 75. Will let you know if it helps any.

Dawn

Hey Dawn,

My indigestion generally hits after I eat. That is why I didn't really associate it with the Topamax until I read your post, I thought that I was suffering from some kind of acid reflux thing. It's very annoying but not as severe as yours, I don't end up in horrible pain, just with "reflux" type symptoms. I hate it, though, and wish there was a solution better than chewing dozens of Tums every day. Maybe I'll try reducing my Topamax dose a little to see if the indigestion gets a little better...

Sorry that yours is so bad, its a shame that you have finally found a med that works for your head just to have it mess you up somewhere else! You could give the Tums a try, they do work fairly well for me and aren't too expensive. I get the ones that have extra calcium in them.

Good luck, Sandy

Sandy,

I'm glad for you that you can tolerate so it does keep the migraines down. Instead of Tums, I take the Caltrate plus Vitamin D since I remember reading something about the importance of vitamin D for us.

Just an FYI, the gastroentorologist I met with yesterday highly recommends that anyone normally taking NSAIDS (not sure if you do or not) take Prevacid on a daily basis. Of all of the acid reducers, Prevacid is somehow different that it is supposed to protect your stomach much more effectively.

Dawn

It's Amazing to me, that Topomax did about nothing for my migraines / cluster HA's, and it works for you ladies. (women do have different migraine things going on).
But, I'm so so happy that you've found something that's helping!

Pete
asb