I have been on and off topamax for years for RSD. I have been on 300 mg now for over a year this time. This is the highest dose I have been on, and I am having the best symptom control. I would really fight if they want me to go off it at this point!

I don't have any digestive issues, and no problems with ice cream or with sugar or sweets.

I think everyone is an individual, and RSD and the meds we take affect us differently.

At this point, I'm not sure my stomach issues have had anything to do with Topamax since I first started it. I've gone up and down on the dose so many times now and it really doesn't seem to make a difference, I've been on 300mg steadily now for four months. I think its more likely just coincidence when I had all the problems the first time. I think it's more likely that my RSD has been spreading internally over the past six months due to a number of other symptoms I've had. The only part there that doesn't make sense is that all of my Ketamine treatments should have stopped it but what do I know? I guess I'll have to suck it up and get the colonoscopy done to be sure. I'm just scared to death of them perforating or tearing anything and causing RSD to spread then.

My doctor advised against a colonoscopy. Since I had severe abdominal pain, he ordered a virtual colonoscopy. I still had to do the prep but the actual procedure was quick easy, and no needle sticks. It is quite pricy but my insurance paid for it since my doctor was concerned about CRPS spread. Hope this helps!