i have CRPS type 2 and honestly this crap is spreading. i dont need another dr to tell me im crazy. its spreading.

I was also told by two drs and a physical therapist that rsd does not spread. Yeah. It does. Mine went from right foot to hip, and I also display symptoms in my right hand and back, and since my scs was pulled, my left foot. This is why people think those if us with rsd are crazy. I'm sorry that happened to you. Hope you feel better!

I have had RSD for four years now. I have been told the whole time that this doesn't spread. I am sooooo frustrated by the fact that it DOES spread. I feel like I have aged 50 years in the last four. I am finding more and more that Drs know nothing about this condition and all they want to do is prescribe pain meds, give injections or insert crap into your body (ie spinal stimulator, etc). I am allergic to all the pain meds they tried and the nerve block injections were to no avail. Anywho, just venting and agreeing with the others that RSD DOES spread. Sorry to burst your bubble, Sweetie. This is a painful and relentless condition. Prayers.

My RSD orginated in my my ankle from a work injury in January. 4 weeks ago I began having neck pain assoicated with a trigger point that affected the back of my head with an intense buzzing, ears ringing, dizziness, head ache with sharp pains that moved down my shoulder and upper back with the burn sensation. Also my right hand contracts and has hypersensation wrist and forarm. I seen Dr. Kirkpatrick a few weeks ago and hope to raise 10,000$ for ketamine IV 4 day treatment. However, my family doctor thinks I am just having seizures. ER doc saids the pain is not real but I believe it is. What happened to patients rights to pain_it is what the patient saids it is.

Hard to understand why drs with a medical diagnosis repeatedly tell RSD suffers our pain isn't real. Wish I could take tho dr with me for one day and let them feel what we feel for even an hour. That would shut up and treat us with the respect and dignity wee deserves". That goes for pharmacists also that question the meds as if we are drug seeking with ZERO medical information about us but have an order from our drs in the form of a prescription. (sorry I needed to vent). Ps tendancy towards picking... Could be from medications. :