Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-24-2011, 12:56 AM #21
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And here is the rest of it:

Participating in a Clinical Trial at the NIH
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"Thanks for this!" says:
ballerina (09-24-2011)

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Old 09-29-2011, 12:27 PM #22
Jerie Jerie is offline
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Quote:
Originally Posted by peppermintpatty View Post
Sorry I didn't respond sooner! Let's see....

Here's a quick blurb with some info:



For my first visit, I have to be there from 8a-2p. They will arrange flights and reimburse up to $20 for meals and $170/night for hotels. (Not sure how familiar you are with the DC area -- you'd be really pushed to try to eat for $20/day, but you could perhaps find a hotel for under $170/night, although taxes in the DC area can be pretty steep also.)

You can still take your current meads, I believe, except for narcotics, benzodiazepine, or Soma.

You'll take either the placebo or the drug for five weeks, then swap meads for a second five weeks.

That's as much as I have right now; awaiting more info.

Hope it helps.
I'm bummed, I didn't qualify, pain is already spread. Hope something comes along soon. I'm tired of flushing money down the toilet. I'm happy for you. I pray it works out good for you.
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Old 10-03-2011, 04:49 PM #23
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Quote:
Originally Posted by Jerie View Post
I'm bummed, I didn't qualify, pain is already spread. Hope something comes along soon. I'm tired of flushing money down the toilet. I'm happy for you. I pray it works out good for you.
Wow, I'm sorry it didn't work out for you. Have you considered any others?

I went through the trial but ultimately the med didn't work for me. It was - and still is - very disappointing, but I'm just moving on to the next step.
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