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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-28-2011, 02:10 PM | #1 | |||
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Is anyone here participating? I've just signed up and passed the preliminary screening. Now waiting for them to contact me (it could take up to a week). Of course, if we have a government shutdown, it will take longer as they won't be able to accept new patients.
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02-28-2011, 03:01 PM | #2 | |||
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Wisest Elder Ever
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It might be that the trials are already paid for.
I wouldn't worry yet.
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02-28-2011, 03:16 PM | #3 | |||
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The funding is there for the trial, but if the government shuts down, the workers themselves won't be there. It would only be for a few days (hopefully). I just hate being held up when I want an answer.
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03-07-2011, 10:05 PM | #4 | ||
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Have you heard anything from NIH regarding the clinical trial? Teri |
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03-07-2011, 10:33 PM | #5 | |||
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I actually did just a few hours ago. I'm in! So excited & can't wait to see how this works out. I am so very hopeful.
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"Thanks for this!" says: | Swatgen27 (03-08-2011) |
03-08-2011, 06:39 AM | #6 | ||
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Please share specifics. How long do you have to be there? Can you still take your current meds? Do they reimburse you for travel, etc? Teri |
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03-11-2011, 11:06 PM | #7 | |||
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Quote:
Here's a quick blurb with some info: Quote:
You can still take your current meds, I believe, except for narcotics, benzodiazepine, or Soma. You'll take either the placebo or the drug for five weeks, then swap meds for a second five weeks. That's as much as I have right now; awaiting more info. Hope it helps. |
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05-17-2011, 07:49 PM | #8 | ||
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Hi Peppermintpatty, How is the neurotropin study going? Are you getting any relief? |
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05-18-2011, 05:15 AM | #9 | ||
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My daughter was in that study last summer for 10 weeks. For anyone considering it, you must have RSD in one limb/side only so that they can use the other side for comparison. They will do a lot of testing on you and they are very thorough. All of this is free to you so it is a wonderful opportunity for those with limited or no insurance.
The staff is very nice there as well. We were able to stay at the Marriott right down the street which took the per diem rate and included parking in it as well. Liz |
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05-18-2011, 03:30 PM | #10 | ||
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Did your daughter get any pain relief from the neurotropin? Teri |
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