Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-05-2011, 05:19 PM #4
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Gram e and Birchlake were both right on the money.

After I was finally diagnosed I made it about a year at work. But I was getting worse and worse. When my RSD finally spread into the occipital region of my head and my head hurt all the time I had to stop working. I just couldn't deal. My PCP put me on fentanyl. My RSD eventually spread to the entire right side of my body, although at times I have battled symptoms in both hands and feet.

Ketamine infusions gave me a chunk of my life back, and after a year's sick leave I was actually able to return to work full time. It took many months of waiting for a 10 day outpatient slot with a doc, I traveled close to 300 miles, my family needed to pitch in to help care for me and my kids, and the WC insurance company fought me every step of the way.

Before I tried ketamine I had 8 stellate ganglion blocks, 1 lumbar block, and 8lidocaine infusions. Plus lots and lots of different meds.

It's now been 8 months since I returned to work and I am still doing OK.

The very best of luck to you. XOXOX Sandy
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