Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-05-2011, 05:19 PM #1
SandyRI SandyRI is offline
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SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
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Gram e and Birchlake were both right on the money.

After I was finally diagnosed I made it about a year at work. But I was getting worse and worse. When my RSD finally spread into the occipital region of my head and my head hurt all the time I had to stop working. I just couldn't deal. My PCP put me on fentanyl. My RSD eventually spread to the entire right side of my body, although at times I have battled symptoms in both hands and feet.

Ketamine infusions gave me a chunk of my life back, and after a year's sick leave I was actually able to return to work full time. It took many months of waiting for a 10 day outpatient slot with a doc, I traveled close to 300 miles, my family needed to pitch in to help care for me and my kids, and the WC insurance company fought me every step of the way.

Before I tried ketamine I had 8 stellate ganglion blocks, 1 lumbar block, and 8lidocaine infusions. Plus lots and lots of different meds.

It's now been 8 months since I returned to work and I am still doing OK.

The very best of luck to you. XOXOX Sandy
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DreaB (03-06-2011), rachel's daugther (03-06-2011)
Old 03-06-2011, 01:13 AM #2
DreaB DreaB is offline
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DreaB DreaB is offline
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Default Thanks so much to all

I have decided to take my life back and not let this thing called CRPS take my life and find what works for me....I guess I will return to work in this pain until I can no longer do it. I have decided that I'm worth it and I need to quit lettin it drag me down and I'm going to quit talking about the pain so much but that it hard to do when people constantly ask how your doin then you have to lie so you dont seem like a debbie downer. Thanks again for all the stories , encouragment and blessings from GOD.
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"Thanks for this!" says:
gramE (03-06-2011)
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