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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Well...I did today. I went to see my new pain doctor that I was referred to by my original pain doctor after complications from my last 2 LSBs. She was very nice...but was totally appalled at my condition and told me I needed to be admitted to a hospital in the city or Mayo Clinic immediately. She asked me several time (probably because I seemed so calm) if I understood what she was telling me...there is something seriously wrong with me and I need a full work up and that I needed to have my primary care doctor refer me for hospitalization.
Ummm...it's been a hellish month and some since I had the last block that caused all these problems (or triggered all these problems as the neurologist said). So I KNOW there is something seriously wrong with me...but to see it from a third party's point of view...a pain doctor of all things... I've never seen a doctor freak out like that. She just kept shaking her head and telling me that there was something seriously wrong with me. That threw me for a loop that I am still reeling from 8 hours later. She was completely appalled at my condition and it freaked me out that she was so freaked out. I still don't really know what to say...but I called my primary care doctor and left a message about the pain doctor's recommendation (which she said she was faxing over to him). Hope he calls back tomorrow because I'm actually getting scared now. Hard to keep that positive outlook when a doctor freaks out and freaks you out...I've just never seen a doctor act like that. And I saw her interact with other patients and nurses and she didn't seem like the sort of person who is prone to act that way. Anyway...this ever happen to anyone else?? |
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"Thanks for this!" says: | Swatgen27 (03-08-2011) |
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#2 | ||
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Do not mean to sound flippant but no- just the opposite-just told needed a shrink lol . to be serious-let us know what happens. Fondly-carol
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"Thanks for this!" says: | catra121 (03-08-2011) |
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#3 | |||
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Co-Administrator
Community Support Team
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What exactly was she so distressed about?
Did she mention any particular reasons? are you emaciated? bloated? Is your color poor, oxygen levels poor? are you in spasms and contorted? sores? bruises? extreme pain level? Just trying to understand her reaction and comments.
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"Thanks for this!" says: | catra121 (03-08-2011) |
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#4 | |||
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Senior Member
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Quote:
Apparently my condition just left her appalled. It's not like I didn't know it was serious, and I have been frustrated that I have had to wait weeks between appointments with different docs while I get worse and worse on an almost daily basis...but the other docs didn't seem as concerned about it like it needed IMMEDIATE attention. So I thought it was just normal frustration with "the system." But this pain doc thinks there is something wrong with my brain stem and that I need a full work up...NOW. Which makes sense because a lot of the things people have told me about which have these symptoms are things that, if caught early, can be cured...but if they're not caught early then they can have lasting effects. And...just for the record...I'd rather not see dogs that have been dead for years walking around my house for the rest of my life. I don't feel crazy...but a lot of these things ARE crazy. I look like a "drunkard" when I walk according to the pain doc...which btw is TERRIBLE for my RSD ankle. |
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"Thanks for this!" says: | Jomar (03-08-2011) |
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#5 | |||
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Forgot to mention that my heart rate has been between 120-150 every time I go to the doctor. They've ruled out stuff like blood clots and stuff as the cause...think it's just because of the pain. But what is THAT going to do to my body?
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#6 | |||
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Co-Administrator
Community Support Team
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Wow , yes sounds like a thorough work up is needed , I hope they do a good job for you when you go.
It does sound like a reaction of some sort... It is frustrating that so many drs are specialized and don't even want to look at the whole picture... sometimes the whole picture is needed before narrowing it down to a specialist.. If they don't "find" anything...or can't offer any treatment.. I'll just toss out a few more alternative options that you might want to think about & explore naturopathy homeopathy reflexology acupuncture hypnosis Reiki [Mind-body therapies are treatments that are meant to help the mind’s ability to affect the functions and symptoms of the body. Mind-body therapies use various approaches including relaxation techniques, meditation, guided imagery, biofeedback, and hypnosis. Relaxation techniques can help alleviate discomfort related to chronic pain.] http://www.webmd.com/pain-management...native-therapy
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"Thanks for this!" says: | catra121 (03-08-2011) |
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#7 | ||
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I'm happy to read your new pm dr would like to have you admitted to the hospital for an extensive work up. I know it is scary when a dr tells you that you have to go in as I have been in & out of the hospitals so many times in the last 4 years I lost count.
I have had to go in and out of the hospital so many times over the years and I can remember how terrifing it can be. However, the Dr's need to rule out other conditions that could be causing the new symptoms. Even after a person is diagnosed with CRPS, it is important that when new Heath symptoms show up the Dr's rule out other serious illnesses as the root cause. I think it sounds like you are on the right track and may benefit from going to the hospital. You probably should have been admitted a month ago since you need tests run and better pain management. Please keep the group posted and know that you are in my thoughts and prayers. Sarah |
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"Thanks for this!" says: | catra121 (03-08-2011) |
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#8 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Hi catra121,
I'm not sure I'd call that "freaking out" (but of course I wasn't there). What may have happened is that you stumbled upon one of those exceedingly rare physicians who really cares about their patients (instead of just paying lip service). If so, and time will tell, she will most likely be a "keeper". ![]() Out of curiosity, how old is she? (Wondering if she's young & idealistic) Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | catra121 (03-08-2011) |
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#9 | |||
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Senior Member
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Quote:
And she really seemed "freaked out"...constantly shaking her head and saying oh my god and so forth. But I agree...I think she will be a keeper because she really did seem to care and her concern was genuine. |
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"Thanks for this!" says: | Jomar (03-08-2011) |
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#10 | ||
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A doc should never say "oh my god"- But like the rest said maybe she is just concerned.....
Debbie |
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"Thanks for this!" says: | catra121 (03-09-2011) |
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