Our situation was odd. Suzy worked for the worlds largest defense contractor, 2 of the 3 insurance carriers she had through this company stated several times that they had no idea what RSD is or CRPS. This at time when she needed a signature for her 2 year- long term care. She did receive a signature for short term but when that was over (six months) the doctor said Suzy was ok to go back to work when she was much worse. This I believe was done on purpose so she would get terminated relieving the company of a deadbeat. She believed this because she was employed in their benefits department under one of their Vice presidents for 15 years at their corporate headquarter. She'd seen it happen before. When she was booted out on the street I picked up insurance at my place of work at a monthly cost of $1850 per month in which my employer covered half. Suzy then got the attention she need after 4 years, several doctors immediately started serious treatment, but a little too late.

I live in WV as well but have yet to find a doctor who knows very much about RSD. I've had it since 1994 & survived ok until the last 2 years. I was wondering if you would mind giving me your doctor's name? I am at my wits end & can't find a doctor that doesn't say hmmm....I'm not real sure what's going on, maybe your body is rejecting your pain pump. I think RSD has spread to my stomach where the pain pump is implanted. Any help or info you could give me will be greatly appreciated!!!! This is my first time to join any group so I hope I am going about asking you this right!

Thank you

Well, I'm in Arizona, but I got lucky. I found a pain Dr. who is very knowledgeable about RSD/CRPS because she has it! It is in remission for her but it is a pet interest for her. She is actually an anesthesiologisst with Valley Pain Consultants in Phoenix.
It looks like most of you are closer to Eastern U.S. so this may not help much.
Anyone feel free to ask more info. if I can share my info. and be of any help.
RSD/CRPS needs more recognition in the medical community!

Hey, there is an RSD FOUNDATION in Tampa Fla, its where I was actually finally diagnosed 5yrs ago now but all in all it's 9yrs next month that I've been dealing w/Gen. RSD. They have a website just search for the RSD Foundation in Tampa & you should find it easily, the doctor is Dr. Fitzpatrick He spent half the day w//me goin over things etc & there were people from other states there just for treatments, If you need any other info or have ?s just ask Hope this helps

I would go to Dr Hashmi in Florida. He was trained by Dr Hooshmund.