Kathy,
Sure!
I've got a $10,000 Zimbabwe bill left. (that will get you about what I got for the US stuff, zip, squat!) I would have been better to just stay home this week.
The VA decided they were going to give me an anesthesiologist referral for a nerve block and gave me a script of tregatrol. Hope that doesn't mess up my vascular system more. Waiting for pain relief for months!
I was surprised that oxycodone was considered a second line on pain. That stuff doesn't do much on nerve pain or that traveling burning. They won't be giving me anymore I'm sure. I have a lesion on my fibula head that gives me a hard time. If I get a nerve block on my entire leg, that should fix that. If not, I'm going to ask for some kind of injection around that bone. That's why I had the foot surgery, hoping it would help my gait so my hip and knee would feel better. That's what I get for thinking again.
The nerve block should let me exercise at least for a while.
Praying too. Should have been listening to the man upstairs to begin with. I had all kinds of road blocks in the way of foot surgery and did it any ways. Puts a whole new perspective on "The stiff necked people of God". Thinking on my own again, lol. I look in the mirror and say to myself, "self, your looking at the problem".
Hope I'm not doing it again on the nerve block....Could be the gift that keeps giving. Oh! I already have that! I'm so lucky. That was sarcasm if you didn't notice. Good luck and God speed to everyone.
Jerie

Dear Jerie, Kathy, Kitty, Tom & all affected -

I just saw this thread and can't believe - although of course I do - what you and others are going through.

And speaking of Dr. Schwartzman, check out what I came across this weekend: Complex regional pain syndrome with associated chest wall dystonia: a case report, Irwin DJ, Schwartzman RJ, J Brachial Plex Peripher Nerve Inj. 2011 Sep 26;6(1):6. [Epub ahead of print] FULL TEXT @ http://www.jbppni.com/content/pdf/1749-7221-6-6.pdf:

Abstract
Patients with complex regional pain syndrome (CRPS) often suffer from an array of associated movement disorders, including dystonia of an affected limb. We present a case of a patient with long standing CRPS after a brachial plexus injury, who after displaying several features of the movement disorder previously, developed painful dystonia of chest wall musculature. Detailed neurologic examination found palpable sustained contractions of the pectoral and intercostal muscles in addition to surface allodynia. Needle electromyography of the intercostal and paraspinal muscles supported the diagnosis of dystonia. In addition, pulmonary function testing showed both restrictive and obstructive features in the absence of a clear cardiopulmonary etiology. Treatment was initiated with intrathecal baclofen and the patient had symptomatic relief and improvement of dystonia. This case illustrates a novel form of the movement disorder associated with CRPS with response to intrathecal baclofen treatment.

PMID: 21943053 [PubMed - as supplied by publisher]

http://www.ncbi.nlm.nih.gov/pubmed/21943053

Granted, the case report deals with a CRPS patient who had dystonia per se of the chest wall, but it was interesting to see that she responded to intrathecal baclofen treatment. I share it for what it's worth and wish all better days.

Mike

PS to Jerie: I leave it to your judgment whether this is worth sharing with your neurologist.

A fellow zimbo with this wonderful nerve pain.... Did you have the nerve block? Did it work? My nerve pain mainly in thoracic area at the front... Nerve block did nothing for me.... TeGratol ?
TE=Jerie;811251]Kathy,
Sure!
I've got a $10,000 Zimbabwe bill left. (that will get you about what I got for the US stuff, zip, squat!) I would have been better to just stay home this week.
The VA decided they were going to give me an anesthesiologist referral for a nerve block and gave me a script of tregatrol. Hope that doesn't mess up my vascular system more. Waiting for pain relief for months!
I was surprised that oxycodone was considered a second line on pain. That stuff doesn't do much on nerve pain or that traveling burning. They won't be giving me anymore I'm sure. I have a lesion on my fibula head that gives me a hard time. If I get a nerve block on my entire leg, that should fix that. If not, I'm going to ask for some kind of injection around that bone. That's why I had the foot surgery, hoping it would help my gait so my hip and knee would feel better. That's what I get for thinking again.
The nerve block should let me exercise at least for a while.
Praying too. Should have been listening to the man upstairs to begin with. I had all kinds of road blocks in the way of foot surgery and did it any ways. Puts a whole new perspective on "The stiff necked people of God". Thinking on my own again, lol. I look in the mirror and say to myself, "self, your looking at the problem".
Hope I'm not doing it again on the nerve block....Could be the gift that keeps giving. Oh! I already have that! I'm so lucky. That was sarcasm if you didn't notice. Good luck and God speed to everyone.
Jerie[/QUOTE]

Hello and Welcome Nades,

Sorry you had to come join our crew but you will find a lot of support here. I see this is your first post and I am concerned you'll get lost in this old thread.

Please feel free to start a new thread with any questions you have or a little introduction about yourself or just to say hello. The most people will see it that way. No need to put it on the intros at the top if you don't want. Just jump right in and make yourself at home!

sending hugs and healing love,

Could the ice water issue be thyroid related?