Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-31-2011, 09:20 AM #3
SandyRI SandyRI is offline
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Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
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SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
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Hi Karen - as I recall, you have a lot of same symptoms as me - RSD of the upper extremity, the cervical spine, with bouts of severe head pain if I used my arms. my RSD eventually ended up in the occipital area of my head and my right leg.

I tried both Neurontin and Lyrica (the newer form of Neurontin) before going on Topamax. Topamax has been amazing for my head pain. It is often used for migraines. Even though I am in approx 80% remission from my RSD from monthly 2 day ketamine infusions, I still find that Topamax is extremely helpful.

Neurontin and Lyrica seem to be the most commonly used for RSD. They have a LOT of side effects, like weight gain and grogginess, check them out by googling them.

I take 60 mg of Cymbalta along with 200 mg of Topamax and .30 of Clonodine a day on a regular basis. As needed meds include Fiorcet, oxycodone, and an occassional Frova (a triptan for migraines). I really hope that this helps. Like I said, your symptoms were very similar to mine when I first got sick....

Good luck xoxo Sandy
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