Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 03-04-2007, 07:57 PM #1
DiMarie's Avatar
DiMarie DiMarie is offline
Magnate
 
Join Date: Aug 2006
Posts: 2,871
15 yr Member
DiMarie DiMarie is offline
Magnate
DiMarie's Avatar
 
Join Date: Aug 2006
Posts: 2,871
15 yr Member
Default

Ada, I know Sundays for me too....
I will never get over that. I feel your pain and I cried the tears today.
It is affecting my work now. I try so hard, but its too hard....
I have a dishtowel today sitting with it crying.

I was taken off work a month to get myself back together...A life time will never heal the heartache.
I am blessed with my children, grandchild, a husband that never complains, well rarely....
But I am sending you a hug as we love each other and share our pain.

But sometime tonight I have to stop and get supper. Tomorrow is a new day, see what that brings.
Love you Ada, you are a special person,
Di
__________________

.
Pocono area, PA

.

.

.
DiMarie is offline   Reply With QuoteReply With Quote
Old 03-05-2007, 04:31 AM #2
allentgamer's Avatar
allentgamer allentgamer is offline
Senior Member
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
allentgamer allentgamer is offline
Senior Member
allentgamer's Avatar
 
Join Date: Sep 2006
Location: Toon Town USA
Posts: 1,023
15 yr Member
Default rebound pain

Awwwwww Ada!

My hip and leg has been unbearable! Can hardly walk anymore. I went to my nephews wedding, about 4 hours and wound up in bed for 5 days.

What I wanted to tell you, and should have posted it on marks post also, is that after you come off opiates, and especially methadone there is rebound pains.

You see the brain gets used to having an outside substance take care of our pain. After you stop using this substance the brain has to start making its natural pain reducers, and the receptors that accept those natural pain reducers used. All the receptors we had before meds atrophyed, and the brain grew receptors to match the pain meds. Now it must regrow the other ones back.

During this time there will be incredible rebound pains, RLS, depression, and other symptoms. The good news is that all the problems will subside, the bad news is it will take some time.
__________________

.
Gone Squatchin
allentgamer is offline   Reply With QuoteReply With Quote
Old 03-05-2007, 11:12 AM #3
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hi DiMarie, Allen, Inhishands,

Thanks for the replies. I know DiMarie you are dealing with far worse then me losing a child. Yesterday was such a bad day and last night was just as bad.
I cried until 4 in the morning over Bill. It seems to be getting harder instead of easier for me.

I finally got my hip calmed down around 2 with a heating pad, lidoderm patch, and Methadone.

The depression has been horrendous to the point of suicidal thoughts again. I think I am just overwelmed with trying to make major decisions, thinking about this surgery and how I am even going to get there for my appt. Susan can't take me because it's at the time when the boys get out of school unless she makes some arrangments. Travis had to go out of town for a week so he can't watch them. Then I have to deal with getting there for the surgery and getting home. Scared too of what's next after the surgery.

Allen, I actually do pretty good with my Methadone. It wasn't doing anything for this hip pain. It always has helped the RSDS and TOS but it wasn't helping the hip pain at all.

As I said I am just overwelmed with decisions and still donot know what I am going to draw on SS from Bill. It's a mess.

I feel like at times I'm hanging on by a thread.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 03-06-2007, 04:47 PM #4
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default

I have been trying to keep busy today to keep from crying so much. I am thinking that being on the flexeril made me even more depressed.

I kept the boys last night and Devin was talking about how much he missed Grandpa. He was telling me that on the way home from school yesterday Dustin told him he was going to call Grandma and Grandpa and see if they could spend the night. Devin had to remind him that it was just Grandma now. They are having as hard a time as I am with this.

I'm trying so hard to make some decisions and do some repairs around here but I look at something that needs doing and just walk off.

The good part. It is around 68 here today. So nice out. What a change.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Old 03-06-2007, 08:00 PM #5
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Heart

ada...i just wanted to give you a bog ole soft hug Attachment 890

just enjoy the nice weather. spring is coming.

i know it is hard to see things that need to be done and not have the umph to to it. but taking care of yourself...giving yourself time to grieve and heal is more important.
__________________

.

Last edited by Curious; 08-29-2007 at 04:28 PM.
Curious is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 02:10 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.