Thanks Daniella

I have been to Hookins 3 times and they couldnt figure out what was wrong with me before i got the RSD diagnosis from my Primary care doctor.
I saw their allergy and immunology dept, he Rheumatology dept...and one other dept i cant remember.

I was also seeing the top dr in Rheumatology for 2.5 years and he didnt know i had rsd. He said he gives up on me so i left his practice...then 3 months later when i was diagnosed...i called him to tell him what i had because he had tried so long to figure it out...and he was like "no you dont have RSD you only get that on your extemeties...and i said no you can get it internally too...and he was mad at me, like who mi to tell him that he is wrong! it made me sad that he treated me that way...so i just said good bye and never called him again.

there is a dr at GW hospital who is known for working with RSD , but her main thing is ketamine infusions which i dont want. i took it orally for about 6 months and I hallucinated non stop...it freaked me out too much!

I am praying that God will find me the right doctor to help me with the Mannitol IV very soon.
Blessings to all
Lori

I doubt that you might have not taken care of yourself after the surgery as the post surgical care is of utmost important for a quicker recovery. Still you have time and suggest get yourself checked again from a different doctor to know the exact cause of your dilemma you are in. Hope you the best.

I took excellent care of myself. I didnt know i had RSD at the time.
the surgery caused the RSD to happen. I immediately complained about the pain and swelling. they could se the swelling...they didnt know what to do after they gave me tons of antibiotics thinking there was an infection. which there wasnt. i saw 20 specialists before i had the 2nd sugrery, no one knew what to do. I have been to hell twice and back again.