my swelling is just crushing my insides...the doctors arent offering any way to help me.
i am calling around to the neurologist offices to see who treats rsd and if they would try the mannitol drug on me. but then i was hinking if i had major liposuction done...would it kill me or could it really help me.

i know we have some medical folks here, i would appreciate your help.
my pain is still bearable by the swelling is getting overwhelming. what if it doesnt stop...whats going to happen to me? im trying not to panic..i just wish i knew that there was a plan to help me. my primary care doctor wouldnt return my calls this week...i called 4 imes and his secretary said she was sorry ..he told her to tell me to call the new pain mgt doctor. it really pset me that he wouldnt call me. i was just in the hospital 2 weeks ago because i coulndt take the pain at home anymore i was a mess!

sorry for rambling...i just dont know where to turn to
i appreciate your help
Lori

liposuction takes out tissue, not water. Maybe after getting the swelling down, but I doubt anyone would consider you before.

oh i see i didnt know that...

thanks

I'm sorry but I'm still confused.
Or maybe I missed the info somewhere.

Do the dr s say it is fluid building up that causes the swelling, or some other type of tissue overgrowth? Or they have no clue....

If excess fluid is the case why not insert a "drain" of sorts?
Or a "water pill" or something to see if it helps.

If tissue growth,
I can see why they might not want to do exploratory surgery due to possible spread, but if it is pretty much body wide already... it might be worth it to ease your discomfort.

hi JoMar

the swelling is in each cell, so a drain wont work because its not a pool of fluid. regular water pills takes water off in a different way..i am told through your vascular system where swelling affects your whole body. mine affects just where i had surgery and the rsd kicked in. some drs have said that my body keeps sending white blood cells to the area because it thinks there is an infection, but there isnt an infection so white blood cells keep coming to heal the area. i have whats called piited edema..you an press your whole hand into my stomch and leave a deep hand impression. its so horrible and uncomfortable. i am getting desperate for help. i am going to find a nuerologist next week to see if they can help me with the diuretic i found called mannitol. it acts differently then regular water pills and has been used for rsd inflammation and it works! im hopeful. it has to be given in the hospital by IV

If the MDs aren't able to offer much else, I don't know if your ins would cover alternative treatments..but
have you considered a naturopath, and/or I don't know if acupuncture would be too invasive with the needles, and if you did try either one it would have to be experts in the field of course.

I don't know if many RSDers have tried naturopathy care as a treatment..I don't recall it being mentioned very much at all.

but i would look into it if I was in this situation and MDs weren't responsive with care or treatments...

I doubt that you might have not taken care of yourself after the surgery as the post surgical care is of utmost important for a quicker recovery. Still you have time and suggest get yourself checked again from a different doctor to know the exact cause of your dilemma you are in. Hope you the best.

I took excellent care of myself. I didnt know i had RSD at the time.
the surgery caused the RSD to happen. I immediately complained about the pain and swelling. they could se the swelling...they didnt know what to do after they gave me tons of antibiotics thinking there was an infection. which there wasnt. i saw 20 specialists before i had the 2nd sugrery, no one knew what to do. I have been to hell twice and back again.