Thanks so much! The information you have provided in this thread has truly been so encouraging, I have many RSD friends here in RI who have not been able to afford to pay our ONLY provider for hundreds of miles the $1,500-$2,000 required for each infusion (really - who CAN afford that??) Most of my friends are insured, but the insurance companies claim they won't cover ketamine infusions for RSD. I am covered by WC, but my authorizations periodically expire and then my doc cuts me off from any services until the court approves a new contract. I am only 4 weeks away from termination now. But I also have United Healthcare through my job and wouldn't have to worry if I could just use that.

Take care. BTW, where do you live? And where does your daughter go to school?

XOXOX Sandy

Sandy,
We are in Va and use Dr Chin at GW in DC for infusions for outpatient. The doctor in NY has asked me not to release any info on their program until they are ready to do it 'officially'. They are picking a few select patients to try to work out the kinks.

Get the list from Jim Broatch at www.rsdsa.org and join all the RSD groups on FB. Ketamine Klub, RSDSA and Barby Ingle are three that I can name right off the bat.

And I would order Barby Ingle's books as well. ReMission Possible talks specifically about insurance, the FDA and ketamine. It is available on Amazon or Power of Pain Foundation. (I don't get a commission even though this sounds like an infomercial!!!)

I get outpatient 4 hour infusions, at a rate now of anywhere between 1500mg-2000mg, I've been getting them for almost 3 years now. I'm at a point where they last about 4-6 months of no pain at all. After the infusion I take booster pills for 2 weeks twice a day. I see Dr. Leverone in los angeles, and he's even been so kind as to find a hospital up here in Santa Cruz county that will allow him to do them up here so I don't have to travel to LA.