Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 07-05-2011, 05:19 AM #11
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
gabbycakes gabbycakes is offline
Member
 
Join Date: Oct 2008
Posts: 518
15 yr Member
Default

Quote:
Originally Posted by ann237 View Post
Greetings I am actually having the treatment done this week for the first time at my pain specialists office. I thank God as being a medicare pt. and medicare will not pay for it because it is so darn expensive, that my pain Dr told the rep listen she is going to be like the test subject and because of that you should provide the treatment materials free of charge...well guess what? They agreed. It is a treatment that has been used on those with shingles, and has provided them with up to 3 months of relief, I understand the risks, and just like everything else there are risks what one person experiences may not be what another does, ie ketamine infusions some have had great results while i have seen someone that has been in a wheelchair now for over a year and was in the hospital for 4 weeks after the first treatment. I have a scs that some swear by but each time i use it my pain levels go even higher if that was even possible. so time will tell, i just am praying for great things, not just for me but for all of us!!!!! Ann
Hi Ann,

Good Luck. Please let us know how it went and how your are feeling.

Gabbycakes
gabbycakes is offline   Reply With QuoteReply With Quote

advertisement
Old 07-05-2011, 11:07 AM #12
lovefamilypets lovefamilypets is offline
Junior Member
 
Join Date: Jun 2010
Posts: 91
10 yr Member
lovefamilypets lovefamilypets is offline
Junior Member
 
Join Date: Jun 2010
Posts: 91
10 yr Member
Default

Quote:
Originally Posted by ann237 View Post
Greetings I am actually having the treatment done this week for the first time at my pain specialists office. I thank God as being a medicare pt. and medicare will not pay for it because it is so darn expensive, that my pain Dr told the rep listen she is going to be like the test subject and because of that you should provide the treatment materials free of charge...well guess what? They agreed. It is a treatment that has been used on those with shingles, and has provided them with up to 3 months of relief, I understand the risks, and just like everything else there are risks what one person experiences may not be what another does, ie ketamine infusions some have had great results while i have seen someone that has been in a wheelchair now for over a year and was in the hospital for 4 weeks after the first treatment. I have a scs that some swear by but each time i use it my pain levels go even higher if that was even possible. so time will tell, i just am praying for great things, not just for me but for all of us!!!!! Ann
Hi Ann,

That is great that you were able to get the patch at no charge. I know all of us struggle with finances and any doctor willing to make that burden a little less is one of a kind.
Please let us know how it goes! We are all looking for new treatments that are effective.
lovefamilypets is offline   Reply With QuoteReply With Quote
Old 11-19-2012, 05:32 PM #13
Treethree Treethree is offline
New Member
 
Join Date: Nov 2012
Posts: 1
10 yr Member
Treethree Treethree is offline
New Member
 
Join Date: Nov 2012
Posts: 1
10 yr Member
Default Qutenza helpful

I have CRPS and have had three qutenza treatments. If your doctor does peripheral nerve blocks, the patches are almost painless. There is some pain afterward, but its manageable often without painkillers. If the peripheral nerve blocks are intolerable for you, try lidocaine cream beforehand, and then go for the blocks. That at least gets you a little numb before they put a needle in you. The qutenza has been a lifesaver in eliminating my burning pain.
Treethree is offline   Reply With QuoteReply With Quote
Old 12-28-2012, 10:14 PM #14
umans33 umans33 is offline
Junior Member
 
Join Date: Feb 2012
Location: Atlanta
Posts: 6
10 yr Member
umans33 umans33 is offline
Junior Member
 
Join Date: Feb 2012
Location: Atlanta
Posts: 6
10 yr Member
Default Just tried it.

Just tried patch 2 days ago. Application and removal are very traumatic to hypersensitive areas. I will let this group know how it works for me.
umans33 is offline   Reply With QuoteReply With Quote
Old 03-06-2013, 10:05 AM #15
RubyCat RubyCat is offline
Junior Member
 
Join Date: May 2007
Posts: 9
15 yr Member
RubyCat RubyCat is offline
Junior Member
 
Join Date: May 2007
Posts: 9
15 yr Member
Default Does the patch only help burning pain?

Hello everyone:

I am trying the patch this Friday. I have CRPS in my right leg and foot, and some type of neuropathy in my neck/upper extremities. I will probably just try my neck to start with, since I am nervous to try Qutenza on my CRPS limb without a block. My doctor did not suggest a block but I think I will request one after reading people's comments.

My question is, for those of you who felt a benefit, did the patch only relieve the burning pain? I also have aching/soreness and tingling, especially with my neck.

Thank you!
RubyCat is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
PCP Treating TOS, Pain & CRPS olecyn Reflex Sympathetic Dystrophy (RSD and CRPS) 4 02-17-2011 05:53 PM
PCP Treating TOS, Pain & CRPS olecyn Thoracic Outlet Syndrome 0 02-16-2011 06:34 PM
Qutenza Flora Peripheral Neuropathy 9 11-22-2009 12:54 PM
Leg ulcer,neuropathy, pain, crps? oldlady Reflex Sympathetic Dystrophy (RSD and CRPS) 3 11-02-2008 09:32 AM
What does CRPS-pain feel like Tiril Reflex Sympathetic Dystrophy (RSD and CRPS) 7 01-08-2008 03:14 PM


All times are GMT -5. The time now is 10:09 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.